My cousin's 9 year old daughter has been diagnosed and the doctors have given up on her. They say she will die soon. However, the little girl lives in Cuba and they do not have the necessary resources to help her out.
Does anybody know any outreach scleroderma foundations that will travel to Cuba to help her or can possibly bring to the US for a surgery or for treatment?
PLEASE, please let me know. Our family is distraught ad we don't know where else to look.