My brother was diagnosed with Scleroderma about 10 years ago. Anything that I have learned about the disease, has come from my own research, as he will not talk about it. That leaves me with a ton of questions, often. His scleroderma has affected his lungs and his heart at this point. He was told by his doctor that he needs an aortic valve replacement. I started looking it up online and I havent found one single article, or blog, that discusses open heart surgery in a patient with scleroderma.....we have also learned that his primary doctor is having a difficult time finding a surgeon that will perform the surgery and it was an 'emergency' 7 days ago....does anyone know anything about this situation?