Dr. Katsumoto. at UCSF

After 10 years with a general Rhumy, I saw a Scleroderma specialist at UCSF. I have been going to their chest clinic for my lung involvement for 7 years.

My experience with Dr Tamiko Katsumoto could not have been better. She spent an hour and 45 minutes with me, checking every part of me, asking a lot of questions, made lots of comments and really listened to what I said. She was very easy to talk with and seemed genuinely concerned. She ordered more kinds of blood tests than I have ever had.
The best part of her concern is that she gave me both her email snd cell phone number and told me not to hesitate to call her for anything.

What a positive experience.

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12 replies. Join the discussion

awww - now THAT is a doctor!! :@)

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Wow! So very happy to hear that you had such a thorough appointment and have found such a supportive doctor. It is very encouraging to read your post.

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I tried to see her and Dr. Connley via referral with Kaiser but they shot me down. I am still working on seeing them somehow. You are in such good care and I am so happy for you. I am slowly teaching my rheumatologist things he did not know and he is very humble and for that reason I am staying. I know what to look for with the disease and when to make an appt.

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WOW!! That's amazing. My rheumy has mostly arthritis patients, but also deals with lupus and sclero patients. That's almost unheard of for a doc to give you their email and cell phone # - how cool is that??!! You'll have to keep us posted on how your appts go with her.

Janelle

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Hi Cherokeegirl, You are a very lucky lady to have found a Dr. that really CARES about the Scleroderma takeing over your body. I am in Massachusetts, and they say we have the greatest Dr.'s in Boston, NOOOOOOOOOOOO. I have wasted 3 year's with Boston Dr.'s trying to get accepted to get on a bilateral lung transplant list, they've never done ONE SD lung transplant I hope your luck continues. Good luck and God Bless

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If you go to pubmed.org, and type
Katsumoto T[Author] (scleroderma OR "systemic sclerosis")
into the search window, you'll come up with a couple interesting articles that she has written.

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Well, that is wonderful to know, Cherokeegirl. Hopefully I'll get to meet her myself sometime within the next six months or so. My regular rheumy, someone who has always impressed me as being "up" on the latest in scleroderma, is really encouraging me to set up an appointment for a consultation. He seems especially impressed with the pulmonologists at the UCSF Sclero Center ... says he considers them a great resource. Wow ... an hour and 45 minutes???? I don't think I've ever spent more than about 20 minutes with any one doc in my life! What a treat it would be to actually be able to sit with a doctor for over an hour and really TALK about this disease.

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To katrine123, I was just told about Mass General having rumeys who deal with sclero. I am from long island and was going there do you know of mass general at all?

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That's great isn't it? I had a similar experience at UCSF with Dr. Koth in their pulmonary dept. Of course I was very happy with the attention, but then I started thinking if I'm getting all this attention, I must be a mess! So far so good though. I was very happy with them too-

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Hi Katrine,
You might want to try Boston Medical, they have physicians who deal with scleroderma.

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Thanks DaisyDo.

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Bulletproof, i see Paul Wolters at the UCSF Chest
Clinic for Scleroderma lung involvement. I find them very interested too. Once I even got to see Talmage King himself.

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