Cialis and Raynaud's

Anyone out there!

My raynaud's is unbearable. Ulcers on hands and toes. I've done everything I'm suppose to do but to no avail. My doc wants to use Cialis. Has anyone tried this or on it for Raynaud's? If so has it worked, what to expect while I'm on it and how long before there was if any improvement. I'm going to have to buy the med myself and would like to know if it is worth the money to even try it. I hope it does work!

Report post

12 replies. Join the discussion

Hi There,

I take Adcirca and it's the same thing as cialis or viagra. It has helped me alot, they will not stop them completely but less. They will adjust the meds you might need to take it a couple times aday. It's worth the try.. Adcirca is alot cheaper than Cialis, just another name so maybe your Dr will appove that. I could not stand it this year my Raynauds attacks where so crazy. I live in the north east and the weather here is crazy, but this year was warmer than usual but not for my hands!! Good luck!! Michelle

Report post

Hello - I feel like Cialis saved my finger last summer. I've been fortunate to only have one finger ulcer, which I believe was caused by slamming my finger in a drawer right after a Raynauds attack. But once I started on the Cialis, my ulcer began to heal and was totally gone within about a month. I was on 20 mg/day at the time. Over the winter months, my rheumatologist prescribes me with 5 mg/daily. My internist gave me free samples whenever she could, but it was very expensive to buy. I had read that Adcirca is the same as Cialis too - I would take Michelle's advice and try to get that. Think I will do the same!
Good luck - I know how painful those things are!
Kristin

Report post

Hi, I've used Sildenafil (generic for Viagra) for over 2 years. 25 mg three times daily. I think it helps. The drug needs to be taken three times daily as it has a short half life. I continue to have circulation problems in my fingers even after having had surgery for a sympethectomy (sorry about the spelling) in all digits of my right hand. I had an ulcer that wouldn't treat and also had a partial amputation of two fingers. Cialis once daily would be more easy to use but it is way more expensive. Adcirca I understand to be as good although I don't think any cheaper.

I also use nitroglicerin ointment at the base of affected fingers to help circulation. Very helpful.

Sildenafil is expensive and most insurances won't cover it. Humana won't even through I went through a long process for approval. In the US it isn't approved for our use by the FDA and insurers don't have to cover it. I get Sildenafil through a Canadian pharmacy and they get it from India. About $100.00 a month supply.

I'm sorry I didn't get help sooner with circulation to my fingers. Hope you'll find help.

Report post

Donna, i've just been given the nitogliceran ointment but the instructions have me a little concerned about using it. the directions indicate it is not a medicine that you can use intermittently but everyday as you may have withdrawal. Do you use it daily?

Report post

I use Prozac and it helped my ulcers more than th amlodipine. I was surprised at how much it helped. The only problem I had was that it gave me Insomnia. I have to cut the dose in half.

Report post

I've been on Adcirca 20mg daily since April 2011. The difference before this and now is that I am living life again. I've documented progress of ulcers/sores prior use and the results have been amazing. It is not the cure all. I still have attacks, but they are bearable. The med is expensive, about $800 for a monthly dose, so hopefully you can get insurance to cover it. I was involved in a clinical trial.demonstrating the efficacy so my specialist did an appeal to my insurance carrier.

I wish you the best!
Wendy

Report post

Hi. Regarding use of the Nitrobid ointment: I wasn't advised I had to use it on a regimented basis. I have used it intermittently. No problem. What about checking with a local pharmacist?

Report post

Hello.....I was prescribed REVATIO 20/mg 3xday......It is made by, I believe Pfizer (SP) the company that makes Viagra. Insurance companies will not pay for Viagra for woman, however Revatio is covered by most insurance companies. Unfortunatly Medicaid and Medicare do not cover it unless the patient was dx with Pulmonary Hypertension....It worked magic for me..

I am going to write to Pfizer for assistance on no cost meds

Report post

I have been put on l-arginine, an amino acid, should help with circulation.

Report post

I take Cialis and it works for me. I've tried not taking it but the pain (cold) is terrible. The cirulation is so much better taking the Cialis. I also use the oinment.

I do think it's worth trying. Keep writing or calling your insurance company. Good luck

Hope this helps.

Report post

My rhemotologist just put me on cialis 5mg and i cut this pill in a half. It was a sample given by him to try it out. I don't see any relief I still get raynaud's atacks. How long do u have to take to see any improvment?I also take amlodipine once a day.

Report post

I used Revatio - however - I only used it as a treatment AFTER the raynouds spasm. And for me it worked in about 10 mins Unfortunatly I did not get preventative benefits. When my fingers went white, numb, then pain - I was glad to have a pill that worked

Report post

This discussion is closed to replies. We close all discussions after 90 days.

If there's something you'd like to discuss, click below to start a new discussion.

Things you can do

Support the Scleroderma Foundation

Help the Scleroderma Foundation reach its goals and support people like yourself by making a donation today.

Donate to the Scleroderma Foundation

Discussion topics

From the Scleroderma Foundation

Community leaders