Cialis and headaches

My sclero doc just started me on Cialis for Reynauds- my Reynauds has been just as troublesome this summer as it was in winter. I am only on my fifth day and this horrible, constantly-there, throbbing headache has me ready to take a hammer to my skull!!! BUT... My fingers are pink and actually warm for once... The ones that are usually blue and always significantly colder than my other fingers are almost the same as my other fingers now. I don't want to give up on something that is obviously working if there is a chance my body is going to acclimate to this and the headache will eventually go away. Anybody else on Cialis start with headaches that then went away???Just wanted some feedback on other experiences with this drug.

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Headache is the number one side effect of Cialis. I get migraines, and it was horrid. I don't think it's the kind of side effect that eases up, I think you either get headaches or you don't. You might want to check with your pharmacist to make sure, then talk to your dr. about trying something else, but I tried two pills for raynauds and they both gave me headaches so I gave up and double mitten and double sock, it's much better than a migraine plus a regular headache on top of it. I feel for you.

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Hi Miss Liss,

The cialis didn't work for me either, I never had headaches, and boy, when on cialis my headaches knocked me down. I can't take it either! My doctor replaced it with Nifedipine ER 30 MG once a day and Nifedipine 60 MG once a day with Doxycyclin Hyc tab 100 MG once a day. My fingers have improved, but I still need to protect them from the weather! Already wearing gloves and my wool socks.
It's hard finding out what meds work for each person, but sharing on Inspire we can work better with our doctors as to what can work for us by trying different meds. Good luck Miss Liss and let us know your progress!

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My daughter is having great luck taking Revatio (Viagra). She takes it 5 times a day and the hands are so much better. It does lower your blood pressure and in the beginning she had to sit down for a few minutes for the woosy feeling to pass. Now she does not feel it that much, but the reaction in the fingers is immediate. She has gone from gangreen on 5 fingers to totally healed in 4 months. Of course there are other drugs that are helping, but the improvement is remarkable. The best part is that Pfizer is sending the Revatio free of charge. That is about $2,400 per month. With the help of her doctor we got enrolled in a program called RSVP.

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Hi Mom39, So happy that your daughter has obtained relief with Revatio. My Dr. recommended that or the nitroglycerin cream. I realized that the Revatio is so expensive and I'm very interested to know how you went about receiving it for free from Pfizer. What good luck! Be well. DianaH

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Oh No!!! I've tried most of the other types of drugs for my Raynauds and nothing has worked-I see my rhumy in 2 weeks and she was hoping to put me on ravatio at that time. I've had terrible headaches with Nitro so I was hoping this was a different class of drugs-I didn't realize headaches was a side effect of this one too!!

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I am actually on 60mg of Nifedipine ER in the am, 30mg of Nifedipine ER in the PM- when I started this med I had some headaches and flushing sensations but they went away after the first week or so. I also was using nitro cream but it was not very effective... Plus having it on your hands like that contaminates a lot of surfaces and isn't very good for all the people around you. The cialis/adcirca is longer acting than revatio/viagra- I only have to take it once a day instead of four times daily. The only problem is these horrible headaches! I would have rated them 10/10 the first few days, then 8-9 the last couple of days... I think maybe yesterday it decreased a little more?? I am really hoping this also is one that my body will learn to tolerate because it really does work and seems to have made the biggest difference in the shortest amount of time. I can take a few weeks of torture if it means keeping my fingers pink and ulcer free in the long run!

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We just went to Pfizer.com and looked around. I don't recall the exact place that we found it. You might also find a phone number. They are super nice, send paperwork directly to the Dr. Also have the patient fill out financial info and then it all gets submitted. My daughter is on disability and Medicaid so the income questions were real easy!!!

And one day we got a phone call that Fed Ex would be delivering a package in a day or two. So, all those bad things about Big Pharma may be true, but this is a good program. My guess is they are working to get this use "on label" not "off label".

Works for us, Good Luck.

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I am on Revatio -(viagra)-and my dr suggested I take a baby asprin about 15 minutes before I take my med. I did this for about the first week or so and it kept me from getting headaches.

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Well before Cialis went on the market, I took an ealier circulation drug for my Reynaud's, and I would suffer headaces for weeks. Some winters, it seemed to ease up after awhile, but sometimes not. I tried to only use these type drugs in the 'winter' months, then come off of them during Spring and Summer.

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