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A "UCTD" with specific scleroderma symptoms

HopefullyHealthy1
  • By HopefullyHealthy1 · New reply 10:15 am
  • Discussion in Systemic scleroderma · 11 replies
  • For the last five years (since my 21st birthday), I've struggled with all sorts of symptoms suggestive of an autoimmune disease (sore joints, cracking joints, muscle aches, heartburn, poor circulation ...

Donating blood

Jrls
  • By Jrls · New reply 9:49 am
  • Discussion in General discussion · 3 replies
  • Does anyone know if you can donate blood if you have Scleroderma and Sjogrens? on Plaquenil, gabapentin, procardia, aspirin, prilosec and cymbalta. Thanks ...

Tips to ease the pain

sg518
  • By sg518 · New reply 9:44 am
  • Discussion in Systemic scleroderma · 10 replies
  • Hi all, my dad is constantly coughing, day, night. It's taking a toll on his body and mental health. I was wondering if anyone has any tips to help soothe the throat or any tips to help deal with the ...

Kindness of Friends

Barnsey
  • By Barnsey · New reply 8:40 am
  • Journal · 9 replies
  • I know that so many of us have stories that involve loss...of independence, of family support, of friends turning away. I just wanted to share an incredible story of this past weekend, and the kindness ...

Cyclophospahmide Effects on me

missmarshmallow
  • By missmarshmallow · New reply 8:34 am
  • Discussion in Systemic scleroderma · 6 replies
  • Hello everybody, wondering what you think about this: I have systemic sclerosis with lung involvment. I am currently being treated with IV Cyclophosphamid, and Prednisone. I have had two cycles so far ...

Digital Sympathectomy & or Joint Fusion

mizoo5
  • By mizoo5 · New reply 8:24 am
  • Discussion in General discussion · 5 replies
  • Hello all, Can anyone tell me if they have had either of these procedures to their hands to improve the contractures in their hands as well as a way to improve circulation to the fingers and decrease ...

Another new talk at www.sclerodermavideo.com

maxcel
  • By maxcel · Posted 7:58 am
  • Discussion in News · 0 replies
  • The following talk has been added.... "The Mind / Body / Spirit Connection", Mark Pettus, MD http://www.sclerodermavideo.com/talk87.h tm It was part of the Tri-State Chapter's Spring Ed Forum - 4/12/14 ...

GERD in the throat?

Not-Crazy
  • By Not-Crazy · New reply 7:00 am
  • Journal · 2 replies
  • I have been hearing gurgling sound in my throat and sometimes my nasal cavity. I have heard it before and always thought it was part of my asthma. I have to cough to try to get something out of my throat ...

impaired LV relaxation

hdcrenshaw
  • By hdcrenshaw · New reply 6:56 am
  • Journal · 1 reply
  • In the auto-immune morass. Echocardiogram just came back showing " abnormal left ventricular diastolic filling observed, consistent, with impaired LV relaxation. EF --55%." No diagnosis yet, but the field ...

Restless leg syndrome "Turmeric".

HyeGyong68
  • By HyeGyong68 · New reply 4:48 am
  • Discussion in Treatment options · 1 reply
  • Hi everyone, I have Scleroderma and part of having this disease is restless leg syndrome. For years Ive been taking medications that make me sleepy and groggy, 5 months ago my doctor would not refill ...

why doesnt family understand

sharn
  • By sharn · New reply 12:09 am
  • Discussion in Systemic scleroderma · 5 replies
  • I've ben trying to find the post about family members not understanding and being I sensitive. I've had reason to reflect on this, especially with events going on in my life . Its gotten me thinking about ...

Scientists find protein that misdirects the immune system

Christine-2
  • By Christine-2 · New reply yesterday at 11:33 pm
  • Discussion in General discussion · 2 replies
  • This is interesting. http://medicalxpress.com/news/2014-02-ul timate-decoy-scientists-protein-bacteria .html#nwlt ...

Retainer for my teeth

Bella428
  • By Bella428 · New reply yesterday at 11:22 pm
  • Discussion in General discussion · 2 replies
  • I recently had a retainer made for myself My teeth were always so straight but Seem to be crowding now awfully quickly Am I going to do damage by wearing it? I need some guidance and input Thank you ...

test came back negitive?

HyeGyong68
  • By HyeGyong68 · New reply yesterday at 10:58 pm
  • Discussion in Newly diagnosed · 12 replies
  • Hello, I have a question maybe you can answer before my appointment. I was diagnosed with Scleroderma in 2010 that same year I had another test done and also the following year, they all came back positive ...

Seeking More Natural Therapies

Hannah7287
  • By Hannah7287 · New reply yesterday at 10:27 pm
  • Journal · 6 replies
  • As I fill up my daily medicine container for the week I am sickened by the number of pills I take. 17, plus 3 others on an "as needed" basis, then vitamins to top it all off. And the number of prescriptions ...

About Fibronectin - swhat they're finding out at Northwestern

DaisyDo
  • By DaisyDo · New reply yesterday at 8:53 pm
  • Discussion in Systemic scleroderma · 1 reply
  • This article should be of interest to everyone with systemic scleroderma: http://www.scienceworldreport.com/articl es/14088/20140418/identifying-new-therap eutic-options-for-treatment-of-scleroder ma.htm ...

Finally admitting it

Jrls
  • By Jrls · New reply yesterday at 8:31 pm
  • Discussion in How my diagnosis has changed my life · 3 replies
  • So I have Scleroderma and Sjögren's, started plaquenil 6 months ago and was finally feeling really good. I can run again a bit (3 miles max) and I have worked my full schedule for 2 months now. I thought ...

ini Metdown at Dr

joylav
  • By joylav · New reply yesterday at 7:06 pm
  • Journal · 5 replies
  • Today I had a checkup with my GP and had a mini-meltdown. How grateful I am for a doc who listens and understands the frustrations that come with Limited Ssc. I am really struggling with my job right ...

Vitigilo and Scleroderma

alij32
  • By alij32 · New reply yesterday at 5:41 pm
  • Discussion in General discussion · 7 replies
  • Hi. I am new to this forum. I am 39 and recently diagnosed with UCTD. I have tested positive for the Scleroderma antibody numerous times. I have an elevated SED rate and Creative protein for the past ...

Arm pain, anyone?

possumpig
  • By possumpig · New reply yesterday at 5:12 pm
  • Discussion in General discussion · 75 replies
  • Hi, everyone, I'm doing pretty well with limited systemic sclero and RA markers but no symptoms of RA, but just got a baffling new symptom: horrendous pain in my arm, mostly elbow to shoulder, shoulder ...

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The Scleroderma Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Scleroderma Foundation, an Inspire trusted partner.