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Guttate Morphea
- By Terri304 · New reply yesterday at 10:28 pm
- Discussion in Newly diagnosed · 3 replies
- I'm completely new to this, confused and worried. If anyone has advice or suggestions it would be greatly appreciated. My 13 year old daughter was just diagnosed with Guttate Morphea, I can only find ...
Destroying Her Life
- By reinwthme · Posted yesterday at 9:41 pm
- Discussion in Systemic scleroderma · 0 replies
- Hello; I have a beautiful friend, she once was full of life, happy, active, full of sunshine. She has been diagnosed with diffuse scleroderma and Raynaud's about 2 years now. We have been seening a Doctor ...
Gift Suggestions
- By DaisyDD · New reply yesterday at 9:12 pm
- Discussion in General discussion · 11 replies
- Hello to all. I joined this group because one of my closest friends has scleroderma and with the holidays approaching, I am wondering if anyone can give me any gift suggestions for her. We exchange gifts ...
leg cramping
- By marieclr78 · New reply yesterday at 7:07 pm
- Journal · 5 replies
- Recently ive been having horrible leg crampings that have kept me up at night. My feet are also painful to walk on immediately after waking up in the morning. My body seems to constantly ache. I have ...
Remission?? Is it possible?
- By saranil · New reply yesterday at 6:50 pm
- Discussion in Systemic scleroderma · 6 replies
- Hi all So I hear a lot of people throwing around the word remission and I must say that it gives me hope, but why do my doctors at least, basically say this is permanent and I will never gain back my ...
Plaquenil and SEVERELY ITCHY SKIN! PLZ HELPPP!!!!
- By AmandaMichelle · New reply yesterday at 6:24 pm
- Discussion in General discussion · 28 replies
- PLEASE HELP! I have been on Plaquenil (well the generic form-- hydroxychloroquine) since October, and for the past about 2 weeks, I have been SEVERELY itchy. My skin turns red, and it feels like something ...
Water or Coke? (or rather any carbonated drink)
- By meriterry · New reply yesterday at 6:22 pm
- Journal · 13 replies
- This was sent to me by a friend: Focus on the hydration thing....... Water or Coke? I could not believe this..... Very interesting WATER #1. 75% of Americans are chronically dehydrated. (Likely applies ...
Reducing lip wrinkles and stretching mouth
- By JKVACM · New reply yesterday at 6:17 pm
- Discussion in Systemic scleroderma · 6 replies
- Hi, I've had SS for several years and have gone through the fear, treatments, drugs and abandonment of a husband like a lot of you have. Now that I am single and feeling pretty good (for having SS) I ...
Bottoms of Feet Hurt - especially the Heel
- By Peggy59 · New reply yesterday at 6:13 pm
- Journal · 40 replies
- I've had a new development in the last couple of months in that the bottom of my feet hurt, especially the left heel. I brought it up with my apt with my rheumatologist in October and he said I may need ...
Leg pain/ACE
- By pepgab95 · New reply yesterday at 6:12 pm
- Discussion in General discussion · 1 reply
- Hi everyone, I was just wondering if anyone has tried Ace wraps for your legs for the severe pain? I was on Plaqunil but developed a whole body rash. My DR wants me to try and cut it down to a 1/2 pill ...
GOOD NEWS BAD NEWS PULMONARY CHECK UP
- By Blkjewelz8960 · New reply yesterday at 12:49 pm
- Journal · 22 replies
- Well had my 6 month Pulmonary check up. Visited the vampires and photographer first. Took pretty pictures of my scarred up lungs. They have automated the system now so no film to take with you. Did my ...
Lines around the mouth
- By Belair09 · New reply yesterday at 12:27 pm
- Discussion in Treatment options · 3 replies
- Has anyone had any kind of successful treatment for the lines around the mouth because of scleroderma ...
I'm having such a bad flare!!
- By samknow · New reply yesterday at 10:58 am
- Discussion in Systemic scleroderma · 2 replies
- Hi everyone, I hope everyone is feeling good. Well i'm not doing so well, my SD has now spread to my right knee and leg. I forgot how much it can cause, since i've had my implant done for my arm, i don't ...
The professionalism of my doctor
- By M_McF_M · New reply yesterday at 10:54 am
- Journal · 18 replies
- The rhemy I saw a week ago has been seeing scl patients for forty years, and is a member of the college of Rhematologists, so he's not a "light-weight" in experience or knowledge about scl patients. His ...
Thanksgiving Day Dilemma
- By sjess · New reply yesterday at 10:52 am
- Journal · 9 replies
- What do I do for Thanksgiving day? I've been invited to my brother's family get-together which is over an hour away. There will be quite a few people there and children. And then I'm supposed to sing ...
A nice puszzle
- By gettingby · New reply yesterday at 10:29 am
- Journal · 3 replies
- Today being the 20th of November I am working on a puszzle of the ship Titanic. As I looked at the box it came in it came to me that even though we might be sick it could be worse. Know what I mean ...
So far, So good
- By gettingby · New reply yesterday at 10:04 am
- Journal · 5 replies
- It seems to me that everyone at this web site has as illness. So with that in mind I would like to tell a story I heard from a friend. There was a man who was very optimistic. Accidently he fell from ...
Is anybody feeling better? What meds helped?
- By jeanniej1515 · New reply November 20, 2009
- Discussion in Systemic scleroderma · 36 replies
- Hi, My name is Jeannie. I've been sick since Oct 2008. I would just like to know if anybody's feeling better and what medications are working for you. I'm 46yrs old and scared to death that I will be ...
Do you know your hands are soft?
- By M_McF_M · New reply November 20, 2009
- Journal · 4 replies
- This was a rhetorical question; of course I know my hands are soft -- I've been holding them out for weeks now for my friends and family to touch, and squeeze. It's such a simple thing, but such a delight ...
Chang Shan / Halofuginone
- By evanrb1 · New reply November 20, 2009
- Discussion in Treatment options · 4 replies
- Has anyone tried Chang Shan? I have been reading about positive effects of Halofuginone for systemic scleroderma. Halofuginone is derived from the Chinese herb Chang Shan, which is available over the ...
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The Scleroderma Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. The Scleroderma Foundation Support Community is sponsored by the Scleroderma Foundation in partnership with Inspire.