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Eye problems

Sansha
  • By Sansha · New reply 11:23 pm
  • Discussion in Newly diagnosed · 10 replies
  • Just wondering if anyone can share if they have had eye sight problems My eyes are drying and very red and blood shot most of the time My eye sight seems to have diminished quite a lot and I have floaters ...

Shoes

Misspaisley
  • By Misspaisley · New reply 11:18 pm
  • Discussion in General discussion · 21 replies
  • My feet need soft kind shoes. I was thinking about the UGGS that are more like slip on shoes than boots. My feet get so red and hurt. Any ideas about comfy shoes ...

LAST DAYS OF MARY KAY CONTEST

28Resa56
  • By 28Resa56 · New reply 11:10 pm
  • Discussion in News · 4 replies
  • TO ALL MY TEAM INSPIRE FRIENDS, YOU HAVE BEEN AMAZING HELP IN THE MARY KAY CONTEST. I HOPE I CAN TELL YOU IN A FUTURE MESSAGE THAT WE HAVE WON. HOW COOL WOULD THAT BE? ! THERE IS ONLY ONE MORE WEEK LEFT ...

Random daily thoughts... #4 Island Fever? No, just nuclear waste.

BSum1
  • By BSum1 · Posted 10:55 pm
  • Journal · 0 replies
  • 4- my family and I found out about a year and a half ago that the island (Treasure Island in SF) we lived on for 8 years has been found to have dangerous levels of radio active waste and parts have been ...

Random daily thoughts...#3 water torture

BSum1
  • By BSum1 · Posted 10:50 pm
  • Journal · 0 replies
  • 3- Just moved into our new house with a pool this past summer. Was planning on spending lots of time in the pool which is not heated. We need to get the solar panels repaired. I am wondering what the ...

Random daily thought... #2 RedLight District?

BSum1
  • By BSum1 · Posted 10:47 pm
  • Journal · 0 replies
  • 2- Planet Beach.... I have been thinking for a while that I wanted to get another membership to Planet Beach, it's a do it yourself spa. They have tanning beds, hydrotherapy massage beds, steam beds with ...

Doctors in Missouri

swarty
  • By swarty · New reply 10:30 pm
  • Discussion in Treatment options · 3 replies
  • Can anyone recommend a good Scleroderma doctor in Missouri? I have only been to the Mayo Clinic and am wanting to have my Scleroderma checked here in the state any help would be great. Even Kansas or ...

Are your feet affected???

Bkgirl
  • By Bkgirl · New reply 10:15 pm
  • Discussion in Systemic scleroderma · 4 replies
  • I was diagnosed last summer with SS, but had it, I believe, for a year or two before diagnosis. My hands are a mess, but now my feet are starting to feel like something is going on - pain, hardness, itch ...

Scleroderma Specialist in Fort Myers, Florida?

Angelsky22
  • By Angelsky22 · New reply 10:03 pm
  • Discussion in Systemic scleroderma · 2 replies
  • Hi: Recently had to move to Fort Myers, Fl with hubby to help with ailing Father in Law and elderly Mother in Law. Looking for a Rheumatologist who is a specialist in Scleroderma, if they exist. Any recommendations ...

Feeding Tube

Dcastig
  • By Dcastig · New reply 9:27 pm
  • Discussion in Newly diagnosed · 1 reply
  • Has anyone had a feeding placed in. I am newly diagnosed with scleroderma, Had surgery on Monday for a hiatal hernia and for gerd and woke up with a feeding tube was told that my esophogus was 3/4 paralyzed ...

HOSPITALIZED....culprit Raynauds...possibility of gangrene!

casagrande
  • By casagrande · New reply 9:21 pm
  • Discussion in General discussion · 12 replies
  • Now I wouldn't call myself someone who panics or winges but last week was not pleasant...rushed to hospital, Doctor saw my fingers and made the call to get me into Hospital immediately. He said I should ...

D Day

BSum1
  • By BSum1 · New reply 8:55 pm
  • Journal · 12 replies
  • So today is diagnosis day. I was pretty certain this whole time that my Dr was wrong about his initial thought that I had false positive ANA and SCL-70. Who has two false positives? I followed up with ...

Morphea or SCLERODERMA

llmiles1984
  • By llmiles1984 · New reply 8:45 pm
  • Discussion in Newly diagnosed · 6 replies
  • My baby boy was diagnosed with. Morphea at 3 months and he is now 11 months. The doctor keep saying. That. Elijah is the first case they have seen in his age group. My Dr. Cant answer any questions and ...

Salt Intake

magpie12
  • By magpie12 · New reply 8:04 pm
  • Discussion in Systemic scleroderma · 4 replies
  • Recently I was diagnosed with thyroid cancer and had surgery to remove it. I also had to go on a non iodine diet for my radiation therapy. During this unpleasant time, I noticed my skin loosen and my ...

Limited Scleroderma (Crest) and Watermelon stomach

crobin
  • By crobin · New reply 7:59 pm
  • Discussion in Newly diagnosed · 6 replies
  • Does anyone have both Watermelon stomach and Limited Scleroderma and Renauds? I was hospitalized a year ago with severe anemia. My hemoglobin was at 5.7 and had to have two blood transusions. I have been ...

Methotrexate withdrawal?

MA33
  • By MA33 · Posted 7:58 pm
  • Discussion in Systemic scleroderma · 0 replies
  • I was taken off Metho last week and suddenly my back, neck, right leg and every muscle in my body hurts. Yesterday the pain was so bad I had chills and felt feverish and today I feel like i've been beaten ...

Raynauds in the esophagus

MicheleZ
  • By MicheleZ · New reply 7:11 pm
  • Discussion in Newly diagnosed · 13 replies
  • I have had lupus, raynauds and fibromyalgia for 25 years. Just recently I have been diagnosed with limited scleroderma and the raynauds has become very agressive. I have a feeling of painful coldness ...

Night sweats????

Wons_S
  • By Wons_S · New reply 6:45 pm
  • Discussion in Systemic scleroderma · 8 replies
  • Does anyone get real clammy and sweat like crazy at night? I was up most of the night last night sweating, I mean wringing wet, and very clammy. I was fine when I got up this morning, just a little tired ...

What do you think about this Bed Wedge?

prog3
  • By prog3 · New reply 6:35 pm
  • Discussion in Systemic scleroderma · 25 replies
  • http://www.contourliving.com/p-19-mattre ss-genie-adjustable-bed-wedge.aspx Just thought I ask before I jump out there and buy one. I understand the longer length issue. I'm 5'6" and I'm sure a ridge ...

Beware of Computer Ripoff!!

stacey9
  • By stacey9 · New reply 5:01 pm
  • Discussion in News · 4 replies
  • Don't buy anything before Googling the company!!! I bought something for my computer as it was crashing and I found out from my daughter that it was a scam company, like a boiler room. It is called Superiortech ...

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From the Scleroderma Foundation

scleroderma: Who doesn't love a nap? #Infographic -- Everything you want to know about naps http://t.co/qY1awTo9Jk

scleroderma: MT @turtlemighty: Two weeks from today, we are going to get #scleroderma to trend world wide on june 3. RT if you will be joining us!

scleroderma: RT @sclerodermaco: Vote for Teresa Nadeau of AL in Mary Kay's "One Woman Can" contest. If she wins $5K will be donated to @scleroderma....

scleroderma: Our thoughts & prayers to Moore OK. Members @scleroderma chapter based in Moore are safe. Tonite's mtg has been canceled.

scleroderma: out'n'about today talking #scleroderma at @atscommunity annual conference; @NESHCo's #neshco2013 & w/ beta sigma phi

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The Scleroderma Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Scleroderma Foundation, an Inspire trusted partner.