My 7yr old daughter was diagnosed this past April with "Borderline" long qt. It has been the most overwhelming time in our lives learning, worrying over this etc etc. She had fainted out of no where mid-April after being in the bathtub. Her ped had tests run (EKG, xray, bloodwork). The EKG showed the prolonged qt waves, and so she referred her to a pediatric cardiologist (2 hrs away). Her numbers are 460 and 468 on a different day. All together she has had 3 EKG's ran, and 2 of the 3 showed this - The 3rd looked normal. She wore a Holter Moniter early on, and it came back showing nothing. The ped card also did an echo and it looked great. After the Ped Cardiologist visit, he put her on a month long heart monitor (non-looping-I think this means this is the one where she would push a button if she felt dizzy, chest discomfort etc. She pushed a few times and I wonder if more than anything it was her being extra cautious, which is fine, but we will find out next week when we go back to him for a followup.
My biggest concern is whether or not I should allow her to be active. She wants to swim so badly on our local swim club (her brother has done this for 5 yrs), as well as she wants to do other activities (basketball, softball, gymnastics..you name it, she wants it). The ped cardiologist said at the end of our 1st appt, "Let her be a kid Mom"....and to just make sure she is hydrated, her salt intake is adequate etc.
I want nothing more than to let her be a "kid", but there is this area of huge concern I have as her mother that I have to protect her. He said there are children that leave his office weekly where he is overly concerned and he will lose sleep over them...and she is not one of them. It is reassuring to me to hear that, but I want be more than sure she is okay???!!!
Has any one ever been thru this same gray area of being borderline? And if so, what was part of your physical activity, or your child's?
Thanks for any advice to this worrying Mommy.
Edited May 30, 2008 at 7:03 am