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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Tips for caregivers
What have you learned about caring for someone with a rare disease that might be helpful to others?
Maternal Phenylketonuria
- By pku62 · Posted November 9, 2006
- 0 replies
- This is addressed to adult women with Phenylketonuria who may become pregnant, may already be pregnant, or have had children. I am a 44 year old mother with Phenylketonuria (pku for short). I have 4 sons ...
Birth Defects Prevention Month
- By kamrynsvoice · Posted October 21, 2006
- 0 replies
- I am a mother from Ohio who gave birth two years ago to a beautiful little girl with a rare intestinal condition called Distal Ileal volvulus secondary to Meconium Peritonitis. In English, while forming ...
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