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My child and school
Is your child's school district supportive? Discuss your experiences, and share tips on how to partner effectively.
My childs school is partially helpful
- By afields90 · New reply November 11, 2009
- 14 replies
- The principal and vice principal of my son's school have been somewhat helpful in my son's condition, he misses a lot of school, but they worked on getting something fixed out so I don't have to get a ...
mastocytosis & GI disorders?
- By mph · Posted October 28, 2009
- 0 replies
- Hi there. Just was in the hospital for diverculitis attack. Wish I hadnt woken up that day. Worse than childbirth. Anyone else out there with this? thankyou ...
Trisomy 17
- By katemcelliott · New reply October 20, 2009
- 4 replies
- Please contact me if you or someone you know has Trisomy 17! My daughter has Trisomy 17 and we'd love to find all others who also do to form a support group. Add me as a friend ...
Kleinefelters syndrome
- By sasikoik · New reply September 3, 2009
- 2 replies
- Hi! Is there anybody there who has a primary school age child with kleinefelter . My son is 8 years old and has a great difficulty in speech as well delays in fine and gros motorskills. He is at the moment ...
Sotos Syndrome- Please HELP!!!!
- By r22alexis · New reply March 3, 2009
- 9 replies
- Hi all, My son is turning 2 on the 16th of this month and i am noticing that he is changing so much.... He is having these violent outbursts and i am not sure if it is because he is turning 2 (terrible ...
(HSP) Henoch-Schonlein purpura
- By kelsi6 · New reply December 13, 2008
- 3 replies
- My daughter just got a diagnosis today, but it all started a week ago, on saturday she had pain in her ancle, then sunday the rash came up and her ancle was swollen but her knee hurt, now today i get ...
Madelung
- By AmyAliRose · Posted July 9, 2008
- 0 replies
- Well myy little sister Chelsea who is 12 years old and today we have found out that she has Madelung. She loves to ride her ponys and always rides her motorbike, shes quite sporty but mostly into the ...
4q33 deletion
- By shannonkot · New reply October 3, 2007
- 1 reply
- My son was born in 1995 and diagnosed at birth with 4q33 deletion. We have gone through everything. Our biggest problem now is he is in school in 5th grade. He is having a really hard time. We had him ...
We need HELP!!!!
- By shannonkot · New reply May 31, 2007
- 8 replies
- My son Austin has a rare disorder called 4q-33 deletion. He has been looked at for Autism and Abergers. He has some symptons, but not enough of either to say he has one or the other. He is 11 yrs old ...
To School or Not to School
- By Dana3 · New reply January 1, 2007
- 8 replies
- When's the best time to start school for toddlers with rare diseases and how often? How can you balance between the fear of infection and the need for social interaction? My Son is 22 months old, his ...
