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Medicare, medicaid and medical insurance
Share your experiences, tips and advice with others.
Mik's HSP
- By camae · New reply November 15, 2009
- 10 replies
- Some of you will remember that I had first posted about my son Mik a few years back. I haven't posted regularly because it's been very hard living with his illness and we have had to deal with depression ...
Stiff Person Syndrome and insurances
- By mikeysps · New reply November 9, 2009
- 4 replies
- I was diagnosed with Stiff Person Syndrome in 2001. Since becoming disabled, it seems like I have had to play doctor, researcher, insurance commissioner, political activist, etc., etc. So much for disability ...
Help NORD Eliminate Lifetime Insurance Caps
- By InfoatNORD · New reply October 29, 2009
- 1 reply
- Many health insurance policies carry lifetime caps, or limits on the amount the policy will pay over an individual's lifetime. This is a potential problem for everyone, but it has special implications ...
Drug - Muscle Spasticity
- By khawarayub · New reply October 28, 2009
- 1 reply
- My nine year old son Abdullah was diagnosed as having 3-Methylglutaconic Aciduria Type - IV about five years ago in Great Ormond Street Hospital, London. Presently he is undergoing extreme muscle spasticity ...
ALEXANDERS ( ADULT VERSION) AND WEIGHT GAIN
- By carolerichard · New reply October 4, 2009
- 2 replies
- My son has the adult Alexanders disease, he is taking food supplements and eats well but with hardly any results, he now says he is going to buy Steriods to help him gain some weight, he is desperate ...
Health Care Reform
- By walter_comer · New reply October 4, 2009
- 3 replies
- We are so blessed not to have had the problem of pre-existence where my Erdheim-Chester Disease is concerned. Interferon alone is $1072 per shipment, 2 syringes, 10 doses per syringe. Man! Add that to ...
Long Road to Boston: Mastocytosis
- By AriahsMom · New reply September 29, 2009
- 8 replies
- I have a question for all of those who have needed to seek specialty care for the treatment of their disease, do you think it is necessary to see the specialist to get answers? The reason I am asking ...
Can you Kick me out in the Cold?
- By SickOfBeingSick · New reply September 24, 2009
- 5 replies
- We are your neighbors, your friends, your compatriots. We suffer from chronic illnesses. Most of our illnesses are hidden, and not readily apparent to those who don't know us well. We suffer in silence ...
23 yr old with HSP
- By camae · New reply September 12, 2009
- 17 replies
- Hi, I've written about my son before, he's 23 yrs old and has been sick with HSP since he was 21. He suffers greatly with Purpura, Petichiea, joint pain and swelling and has experienced bleeding in his ...
It's a Start
- By SickOfBeingSick · New reply July 11, 2009
- 2 replies
- I still haven't straightening out my Medicare mess with Medicare subrogation saying Medicare is not my primary insurance when they are my only coverage. It's been going on for 9 months now. However, I ...
BILL OF RIGHTS
- By SickOfBeingSick · Posted July 8, 2009
- 0 replies
- PATIENT'S BILL OF RIGHTS PLEASE POST, FORWARD BY E-MAIL AND PRINT AS APPROPRIATE 1. We have the right not to be discriminated against on the basis of sex, age, weight, height, mental illness or other ...
So confused by insurance (non-)options
- By Miss_BB · New reply June 6, 2009
- 1 reply
- I am writing here with the hope to get advice on how to get insured with an OTC deficiency. To make things even harder I am not american but I am here with a 3 to 6 years visa starting this October. For ...
Baby you can be my Doctor
- By SickOfBeingSick · Posted May 30, 2009
- 0 replies
- Baby you can be my Doctor (To the melody of The Beatles song "Drive my Car") I asked a girl what she wanted to be and she said baby can't you see, I wanna be famous a star of the screen, but I can't do ...
Ballad of the Uninsured Child
- By SickOfBeingSick · Posted May 30, 2009
- 0 replies
- Ballad of the Uninsured Child In memory of the 4-year-old little boy who died in 1984 after being turned away from a North Texas emergency room with a high fever because his parents had no insurance ...
Disability
- By walter_comer · New reply May 18, 2009
- 13 replies
- So, tell me about disability. My blog explains why. But, short and sweet, some things have turned South and concern me for my safety and others ...
medicade
- By heathersmom · New reply May 8, 2009
- 8 replies
- Anybody out there have ssi with medicade? Do you all have problems? Does anyone feel as though our insurance companies should have to cover pre-existing problems? I do...... I wrote my state representative ...
Lambert Eaton Myasthenic Syndrome
- By Laveta · Posted February 6, 2009
- 0 replies
- Anyone have any problems with insurance refusing hosp admittance for IVIG even though the neuro sent an emergency letter stating that admittance was necessary ...
Ensuring care for HSP
- By camae · New reply February 4, 2009
- 1 reply
- My son Mik has been very ill with HSP since Oct 2006. Since he has no Insurance he relies on a public low-income clinic in out city. He is awaiting notification from SS on a hearing in front of a Judge ...
Genetic Testing for Ehlers-Danlos Type IV
- By fannyfarfunkle · Posted November 21, 2008
- 0 replies
- Has anyone ever successfully had medicaid pay for the genetic testing for ehlers-danlos type IV. I hear that usually it has to be paid by credit card in advance and that doctors don't have any luck getting ...
chronic inflamatory demilinating polyneuropathy
- By msnormaj · New reply October 15, 2008
- 4 replies
- I recently began treatments(JUNE-06) for my disease-CIDP.I along with my Doctor am pleased with the results of the treatments.Ino longer am experiencing the constant pain and weakness in my legs and hands ...
