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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Finding emotional support
Are you getting the support you need? If so, how did you find it and what would you recommend to others?
Trigeminal NEUROPATHY
- By twowesties · New reply June 30, 2009
- 59 replies
- I have trigeminal neuropathy (not neuralgia) which has totally changed my life. Until my dr. put me on Cymbalta, the burning pain in my upper back teeth was intolerable. The only thing which helped was ...
hereditary spherocytosis
- By hspherocytosis · New reply June 27, 2009
- 3 replies
- it seems like everyone has had or known someone who has had their spleens removed becuase of hs.i have hs and i am 23 and still have my spleen. it has been enlarging over the last few years. i am told ...
Pityriasis Rosea
- By Tracietheonlyone · New reply June 26, 2009
- 4 replies
- My daughter has KT, she is 12 She recently started having a rash which the doctor decribed as Pityriasis Rosea? Has anyone else had this... Thanks Tracie ...
Primary Peritoneal Carcinoma
- By VER · New reply June 26, 2009
- 8 replies
- I have just been diagnosed with PPC Stage 3C Grade 3 and have been told it is a rare cancer that they do not know much about. I am looking for anyone else diagnosed with same to talk to ...
RTA
- By PJ75 · New reply June 25, 2009
- 1 reply
- Hi I was wondering if anyone on this site has or knows anyone with Renal Tubular Acidocis I would like to find others who I can relate to that have the same disease. Thanks for your time :) PJ ...
LOUIS
- By carolerichard · Posted June 24, 2009
- 0 replies
- PLEASE ANYONE WITH ADLT ONST ALEXANDERS DISEASE PLEASE CONTACT ME ...
Looking for people with Klinefelters Syndrome in Australia or anywhere else
- By klineaus · New reply June 24, 2009
- 6 replies
- I am looking for any other peaople with or who have a person with Klinefelters Syndrome, whether it be a partner, sibling, or child, Here in Australia oir any other part of the world, I am looking to ...
Ig G1 Deficiency
- By Syd_Mum · New reply June 20, 2009
- 40 replies
- Hi, I was wondering if anyone else has been diagnosed with Primary congenital Ig G1 specific deficiency. My daughter and I were diagnosed with this about 18 months ago. We have had a really hard time ...
fibromyalgia
- By walmartheifer · New reply June 15, 2009
- 19 replies
- Does anyone else out their have this horrible disease ...
Conn's syndrome (hyperaldosteronism)
- By jacque · New reply June 15, 2009
- 76 replies
- I would like to know someone else's story about their experience with Conn's syndrome. What were their symptoms before they were finally dignosed, and what is their treatment (medication or surgery ...
Erythemia multiforme
- By faye40 · Posted June 13, 2009
- 0 replies
- I want to find someone who has this disease. i have had it since i was 13. i would really like to talk with someone about how it has affected their life. I am still trying to cope with having this disease ...
Diploid/Triploid Mosaicism
- By snuggles · New reply June 12, 2009
- 6 replies
- My unborn daughter was diagnosed as a diploid/triploid mosaicism baby at 20 weeks of my pregnancy but we lost her on April 28,2008 and wanted to keep learning about this condition and what the odds are ...
Imagine
- By SickOfBeingSick · New reply June 10, 2009
- 7 replies
- IMAGINE Imagine that you are a mother, and you can’t get medical care for your child. All you can do is watch while they suffer. Imagine you have a chronic illness. No one will listen to you and no one ...
Hyperaldosteronism help
- By flowerspy · New reply June 6, 2009
- 4 replies
- Hi, I was diagnosed with an adrenal tumor/hyperaldosteronism back in May. I have learned a lot since then but still have many questions. One thing I know is that many drs, including endocrinologists ...
Neonatal Graves disease
- By Valarie · New reply June 3, 2009
- 11 replies
- Hello all, I am trying to find anyone that has had a child with Neonatal graves disease that may need some support. Unlike most people that have children with this disease I am well versed in it. I have ...
Metaphyseal chondrodysplasia type schmid
- By Nina24 · Posted June 3, 2009
- 0 replies
- My 2 year old son is still in the process of his diagnoses of metaphyseal chondrodysplasia type schmid. He was first thought to have Rickets Disease which according to his blood work it doesn't seem to ...
Cyclic Neutropenia
- By veroamore · New reply June 2, 2009
- 3 replies
- Hello. I was diagnosed with cyclical neutropenia 3 years ago with no family history of it. I am now 19 years old. I feel like this illness rules my life and that there is nothing I can do to change it ...
Emmsy76
- By Emmsy76 · New reply May 31, 2009
- 6 replies
- My daugter was born with a meningocele, had a vp shunt fitted and has ocular motor apraxia. She is developmentally delayed and people blame me but ive heard its part of the conditions. Can anyone put ...
TRUTH - READ AND FEEL GOOD
- By beansy · New reply May 30, 2009
- 3 replies
- Measure a disabled person’s strengths by how much effort it takes to discourage them from something they are set on doing ...
The Virtual Playground :)
- By SickOfBeingSick · Posted May 30, 2009
- 0 replies
- The Virtual Playground - Ok, this thread is about having fun :) Our various diseases and disorders are very limiting in real life but who says we can't go to the beach, skip rope, go rock climbing, skydive ...
