Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Financial issues

Discuss the impact of having a rare disease on your financial health. Have you found resources that others should know about?

medical coverage

Darlene1
  • By Darlene1 · New reply March 17, 2008
  • 1 reply
  • My son who is 28 yrs old and has ALD has been trying to get a medical card for acouple years. He also is trying to get on SSI. He was denied 4 times. We have hired a lawyer, but it is still taking a long ...

How Do You Make Ends Meet?

Jessie3
  • By Jessie3 · New reply March 5, 2008
  • 15 replies
  • I'm at a financial point in my life where I have sold my home (I made no money - I was happy someone bought it in this Real Estate Market. I actually had to bring $ to the table at closing to sell the ...

Help for adult with Henoch Schonlein Purpura

Muriel
  • By Muriel · Posted November 11, 2007
  • 0 replies
  • You might want to try Dr. Merrill Benson of Indiana University in Indianapolis. Go to our website www.amyloidosissupport.com and under medical links you will see his name and number ........ Good Luck ...

Human Parvo Virus B-19

jfajfa
  • By jfajfa · New reply June 6, 2007
  • 2 replies
  • I guess this is a good place to start. Here are the basics. 55 years old 2 teenage daughters disabled wife who works part-time own my own bussiness close to bankrupt lost my insurance no retirement money ...

Long-distance medical air transportation

EBoyer
  • By EBoyer · New reply February 9, 2007
  • 5 replies
  • I have had a lot of experience helping patients and patient families get access to charitable medical air transportation for going back and forth to distant specialized sites for evaluation, diagnosis ...

ectodermal dysplasia (hair, teeth and nails)

ebtxn
  • By ebtxn · New reply February 8, 2007
  • 2 replies
  • single parent in need of help finding way to provide dental implants/treatment for 2 daughters desparately needing treatment for ectodermal dysplasia (one more severe than other). I have no insurance ...

Help Paying for Meds. Must be imported VERY$$$$

blackbirdsings
  • By blackbirdsings · New reply January 1, 2007
  • 5 replies
  • I have been diagnosed with Hereditary Angioedema. I do not qualify for a clinical study at this point that we have been able to find that would work with me..excluded due to medicine I am. The medicine ...

I've found 'some' sources....

dahlek
  • By dahlek · New reply September 25, 2006
  • 4 replies
  • Can I post the web sources? They are all, from what I can tell, totally legit... Someone let me know ...

Group leaders

You