Discuss the impact of having a rare disease on your financial health. Have you found resources that others should know about?
- By dizzybee · Posted October 24, 2008
- 0 replies
- I am in no way affiliated with any of the links/names I am about to post. I just happened upon them. Transportation Assistance: Air Charity Network The Medical Transportation Reimbursement Fund (the MOTOR ...
- By SickOfBeingSick · New reply October 14, 2008
- 4 replies
- I have a wonderful motorized wheelchair that a lovely lady gifted me when her husband died. However, it just sits in my shed. I can't use it because I don't have a lift to put it on the back of my car ...
- By pita · Posted September 20, 2008
- 0 replies
- Helping One, Who Helps Others! featuring Gospel, Blue Grass, and Country Singers and bands PLUS, an Auction, Food, Horseshoe Tournament and Carnival Games Friends of Cherokee County Firefighter / Fire ...
- By donnaarr · New reply September 6, 2008
- 1 reply
- I am a 45 year old woman, mother of two daughters and was married to my husband for ten years. I was thrown out of my family home on July 18, 2006, at 9:00PM by two Catawba County, NC, Sheriffs. I was ...
- By bakerfamily · New reply August 30, 2008
- 2 replies
- My son was diagnosed at birth. I immediately applied for disability for him. It took 30 days before I could get an appointment with Social security disability. After 4 months my request was denied. Apparently ...
- By suzQ · New reply August 19, 2008
- 6 replies
- This is my first post: I am on a power search to help our (a community of over 500) friend Killagrrrl (Donna) who "went down" on New Years Even, in SanFRan (she is from NYC) - and...yeah - moya moya aneurism/brain/coma ...
- By Delilah · New reply July 26, 2008
- 16 replies
- Hi, I sent you an email via the friends link. Hopefully you get it, I have never sent one before. I got Parvovirus B19 in September 2003 and I still suffer from very debilitating symptoms almost 4 years ...
- By coxter · New reply July 17, 2008
- 3 replies
- Good Day, My name is Mike Cox and I am a 40 year old male, diagnosed with Isaac’s almost 10 years ago. I have been experiencing symptoms for nearly 13 years, everything from stiffness to spasms. I have ...
- By LexVanDerHeijden · Posted May 21, 2008
- 0 replies
- The worldwide CMTC organisation, based in the Netherlands, would like to setup an American chapter operating under the worldwide organisation. What are the legal, financial and tax implications? Any tips ...
- By hkirkwood · New reply May 19, 2008
- 5 replies
- Actually, I'm putting this question here because I don't know where else to put it. It doesn't really fit with the current subject headings - so if I could suggest a new subject catagory how about something ...
- By camae · New reply May 9, 2008
- 3 replies
- I have been caring for my 22 yr old son for the last year. He was diagnosed with HSP in Oct of 2006. He has been unable to work since it first appeared and has accumulated more than 80,000.00 in med debt ...
- By carrieroman · Posted April 28, 2008
- 0 replies
- So is there anybody that knows what I can do to get help. My daughter is 4 and was diagnosed withTurners Syndrome about 2 years ago. She has been taking hormone injections everyday since. Now we had to ...
- By nimfa_dabu · New reply April 15, 2008
- 5 replies
- Hi, i'm Nimfa, 33 years old, from Philippines. My 2 sons were diagnosed with Hunter Syndrome. There is available medicine SHIRE but I could not afford it. Please help me find donors so we could help my ...
- By Darlene1 · New reply March 17, 2008
- 1 reply
- My son who is 28 yrs old and has ALD has been trying to get a medical card for acouple years. He also is trying to get on SSI. He was denied 4 times. We have hired a lawyer, but it is still taking a long ...
- By Jessie3 · New reply March 5, 2008
- 15 replies
- I'm at a financial point in my life where I have sold my home (I made no money - I was happy someone bought it in this Real Estate Market. I actually had to bring $ to the table at closing to sell the ...
- By Muriel · Posted November 11, 2007
- 0 replies
- You might want to try Dr. Merrill Benson of Indiana University in Indianapolis. Go to our website www.amyloidosissupport.com and under medical links you will see his name and number ........ Good Luck ...
- By jfajfa · New reply June 6, 2007
- 2 replies
- I guess this is a good place to start. Here are the basics. 55 years old 2 teenage daughters disabled wife who works part-time own my own bussiness close to bankrupt lost my insurance no retirement money ...
- By EBoyer · New reply February 9, 2007
- 5 replies
- I have had a lot of experience helping patients and patient families get access to charitable medical air transportation for going back and forth to distant specialized sites for evaluation, diagnosis ...
- By ebtxn · New reply February 8, 2007
- 2 replies
- single parent in need of help finding way to provide dental implants/treatment for 2 daughters desparately needing treatment for ectodermal dysplasia (one more severe than other). I have no insurance ...
- By blackbirdsings · New reply January 1, 2007
- 5 replies
- I have been diagnosed with Hereditary Angioedema. I do not qualify for a clinical study at this point that we have been able to find that would work with me..excluded due to medicine I am. The medicine ...
