Recommended journals
- By TeamInspire · Posted March 13, 2008
- 21 recommendations
- Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...
- By WhataBreeze · Posted March 9, 2008
- 2 recommendations
- Hello NORD Rare Disease Community Members and Online Viewers: Thinking back it wasn't that long ago in 2004 while having a conversation with Jacquiline until Auguso Odone' President of the Myelin Project ...
- By julez68 · Posted January 3, 2009
- 1 recommendation
- my daughter is now 10 1/2 years old... after 2 years of mysterious symptoms, she was finally diagnosed with a form of systemic vasculitis... the problem is that in theory her dr's have heard of this disease ...
- By tdhssp · Posted January 1, 2009
- 1 recommendation
- Our little girl passed away in December 2006 from a cardiac event at the age of 13 years. Samantha had a rare chromosome disorder and a bicuspid aortic valve, however, no other similarly diagnosed persons ...
