Recommended journals
- By Walter · Posted June 20, 2008
- 27 recommendations
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
- By TeamInspire · Posted March 13, 2008
- 21 recommendations
- Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...
- By Walter · Posted April 25, 2008
- 19 recommendations
- Hello everyone. We just added a feature that many of you have requested - a list of all of the posts that you have replied to. To get to your list, all you need to do is: 1. Sign in 2. Click "Me" in the ...
- By Brian · Posted May 23, 2008
- 15 recommendations
- Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...
- By debinok · Posted April 7, 2008
- 4 recommendations
- I think the most difficult part of having this disease aside from the pain is the unknown. I don't know how to prepare. Both my disease descriptions have an unknown prognosis.Yet, I feel guilty because ...
- By tdhssp · Posted November 28, 2008
- 2 recommendations
- In loving dedication to our beautiful ^j^ daughter, Samantha, a place for persons with all disabilities to gather and learn from each other: Rare chromosome issues such as Tetrasomy 18p, Autism and more ...
- By WhataBreeze · Posted March 9, 2008
- 2 recommendations
- Hello NORD Rare Disease Community Members and Online Viewers: Thinking back it wasn't that long ago in 2004 while having a conversation with Jacquiline until Auguso Odone' President of the Myelin Project ...
- By patriciacamacho · Posted August 9, 2007
- 2 recommendations
- I'm a 40 year old female who was diagnosed with stiff person syndrome in January. After many years of tests and wrong diagnoses. I don't know if it was a relief to know there is really something wrong ...
- By julez68 · Posted January 3, 2009
- 1 recommendation
- my daughter is now 10 1/2 years old... after 2 years of mysterious symptoms, she was finally diagnosed with a form of systemic vasculitis... the problem is that in theory her dr's have heard of this disease ...
- By tdhssp · Posted January 1, 2009
- 1 recommendation
- Our little girl passed away in December 2006 from a cardiac event at the age of 13 years. Samantha had a rare chromosome disorder and a bicuspid aortic valve, however, no other similarly diagnosed persons ...
- By dizzybee · Posted December 3, 2008
- 1 recommendation
- I am just ranting here, letting off some steam. But, it seems everytime I turn on the tv there is a new show on mystery illnesses and how time after time the patient is turned away, usually with a script ...
