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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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New journals
Jornal Entries
- By TeamKoda · Posted October 27, 2009
- 0 replies
- I blog @ www.ricknvon.blogspot.com ...
Trigeminal Neuropathy
- By derwin · Posted October 27, 2009
- 12 replies
- Hi Everybody. I just accidently deleted my journal entry and all your responses (Learning1 and Sophie Rose to be specific). So here it is again. I have Trigeminal Neuropathy from a severed nerve that ...
Bad bad day
- By shan789 · Posted October 26, 2009
- 5 replies
- I have been having sever pain the last 4 days, so I made an appt. with my doc. He first of all asked if I have tried praying or meditating my pain away. Mind you every time I breathe my left shoulder ...
mastocytosis
- By DanielleLee · Posted October 26, 2009
- 5 replies
- I am newly diagnosed with mastocytosis and would like to hear form others who have the disease and discuss what has worked for them. I am a Registered Nurse so have sime medical knowledge of the disease ...
Emmy checking in...
- By MelissaShuford · Posted October 26, 2009
- 2 replies
- Emmy's protein was on am dip 4+ then, 2+ and 2+, but my question is if she voids during the nite is this still an accurate measurement? I know with 24hr urine's we always had to count every drop in the ...
believe whats inside not only the outside
- By nyitalian · Posted October 25, 2009
- 10 replies
- i really believe people just look at a person ,and, make judgement, well, they really dont look sick, but, they donot relize of the things they dont see,you cant judge a book by its cover, to all of us ...
Today is the day that the Lord has made, let us rejoice & be glad in it.
- By 1955-53 · Posted October 25, 2009
- 2 replies
- Of course, my neighbors & relatives have been finding about my SPS & so many have said they don't know how I can stand it but my faith shall sustain me. When I see children suffering so much with neurological ...
Neuropathy?
- By dianes123 · Posted October 24, 2009
- 10 replies
- Hello all, I know I have not belong to this forum for a long time but I need some help managing some of the side effects of what is left of my back. I am not even sure if I am putting this in the right ...
Here we go again....4+ protein
- By MelissaShuford · Posted October 23, 2009
- 5 replies
- Em hasn't been feeling well lately and it's hard to tell whats wrong it's still "I just don't feel good" got up this am with puffy eyes....I had not dipped her am urine in several days because we had ...
Life Goes On
- By jhewels · Posted October 22, 2009
- 4 replies
- Hello my name Jhewels and I live with Dercum's Disease, DDD and so on. Irelieved to have found the source of my pain, and others who have this disease or suffer from a rare disease. It is nice to know ...
URGENT..Now my son has Chronic Lung disease.
- By denisehenshaw · Posted October 22, 2009
- 18 replies
- if you read all my other entries you have seen that I am going through alot right now.. I am just wondering what in the world is chronic lung disease and if anyone else on here has had preemies that have ...
Pulmanry Problems ??????CONFUSED!!!!!
- By Rodeogrl02 · Posted October 22, 2009
- 13 replies
- I told my neurologist whom I see for dysautonomia that I keep getting really short of breath with very little exsertion, just like walking a few feet or up a few stairs, so she ordered a pulmonary function ...
SPS
- By 1955-53 · Posted October 22, 2009
- 0 replies
- iF YOU ARE INTERESTED IN JOINING THE SPS FOUNDATION THAT IS NEW, GO TO FACEBOOK & SEARCH SPS. IT IS NEW & THE LEADER IS SUFFERING & WORKING SO HARD TO PUT THIS TOGETHER! GOD BLESS ALL OF YOU! DIANE SPENCER ...
Cerebral vasculitis
- By Margaussie · Posted October 22, 2009
- 4 replies
- Hi to all.Have a question that somebody maybe able to help me with.I was diagnosed with cerebral vasculitis in Jan 09.Had a few attacks since then but the last one was for 3 days with vomiting and the ...
hello
- By kellyjoe · Posted October 21, 2009
- 10 replies
- hello new to site kellyjoe ...
The Unknown Condition
- By Tinman · Posted October 21, 2009
- 4 replies
- This was written before I was diagnosed. The words are the truth and finding others like me saved my life and my sanity. This is for all of you. The Unknown Condition I thought I was drowning, I felt ...
Emmy's Peds visit...No Flu vaccination
- By MelissaShuford · Posted October 21, 2009
- 4 replies
- Good morning everyone!!!!! God Bless you all!!!!! We went to Em's new pediatrician yesterday and the visit went well Em seemed comfortable with her. H1N1 was available but between Em's egg allergy and ...
DCLG meeting
- By joyceg98 · Posted October 20, 2009
- 0 replies
- I'm back from Europe, now in Washington at the NCI Director's Consumer Liaison Group meeting (DCLG) -- NCI is the National Cancer Institute (US). The meetings are open, and are being webcast if you are ...
Surviving Stress with Mastocytosis Part 2
- By Poetessa · Posted October 20, 2009
- 12 replies
- So we all agree that stress and Masto are not a good combo yet life doesn't always co-operate with us!! Sometimes as much as we try to avoid it... we just can't. Everyone around me tells me to "toughen ...
All Who Live The Mystry Illness
- By Tinman · Posted October 20, 2009
- 4 replies
- This was written before my actual diagnosis of SPS. Written in August 16, 2007. Another call for help gone on through deaf ears and revolving doors. This, once again showing my desperation to be heard ...
