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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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New journals
my oldest and her rnd
- By senecamom · Posted October 31, 2009
- 0 replies
- after going thru outpatient therapy our oldest is pain free and has no effects of the rnd. now it's not to say that it won't come back down the road but we are greatful that she is having no problems ...
RND and Yoga
- By zanypaws · Posted October 31, 2009
- 1 reply
- My daughter is 13 and has Reflex Neurovascular Dystrophe. Is there anyone out there with this condition that has had success or not with Yoga? I feel like I'm spinning my wheels ...
inspiration
- By barbear · Posted October 31, 2009
- 0 replies
- guess I'm hogging this journal thing tonite...as I'm learning to navigate this site..and it will take me a while!..I am truly inspired by the stories I'm reading...I try to put my rare disease in perspective ...
msa of the brain
- By randy1955 · Posted October 31, 2009
- 1 reply
- I have msa of the brain I have lost most of all my short term memory and now it's in my long term also my bowels doesn't work any more I have to take a shot every other day to get them to work I have ...
Eosiniphilic fasciitis
- By barbear · Posted October 31, 2009
- 0 replies
- Hello everyone..just having a whimpery, whiney day today..guess it matches the weather outside..rainy, windy, gloomy...lots of pain today..of course some of that is from a big fall took earlier in the ...
FINALLY GETTING BETTER
- By nanomary · Posted October 30, 2009
- 4 replies
- AFTER 16 MONTHS OF TERRIBLE PAIN, INFECTION AND NOT BEING ABLE TO WALK, I AM FIANNLY GETTING BETTER!!!!!! PRAISE THE LORD!!!!! THANKS FOR PRAYERS ...
Update on nausea
- By Zacolton · Posted October 30, 2009
- 8 replies
- Just an update on my previous post. My nausea is almost gone now, no idea why, just gone, but anyways I'm working slowly and carefully on reintroducing food and regaining strength. I hope now that I'm ...
Hi
- By tarlov2 · Posted October 29, 2009
- 0 replies
- Glad to be in the group ...
I have IGAn . . .
- By jbon317 · Posted October 29, 2009
- 21 replies
- this is all so new to me ...
Dercum's Disease
- By Fargo · Posted October 29, 2009
- 0 replies
- I suffer from Dercum's Disease. It takes away everything as you knew it. Your body, hobbies, work, play, hope and mind. I will see Dr. Herbst in January and am looking forward to that. I pray that she ...
Is this "normal"....mood swings
- By clkempf · Posted October 29, 2009
- 12 replies
- Not the kind we had once a month but the kind that make you cry and then angry ??? I am finding out I am biting my husbands head off daily and that is not normal for me..... just diagnoised with Stage ...
Somebody PLEASE HELP!!! ={
- By pwrsrg77 · Posted October 29, 2009
- 83 replies
- Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...
RND at 9
- By pammiek929 · Posted October 29, 2009
- 0 replies
- My daughter started to develop RND when she turned 9. She was diagnosed very quickly, so it did not disable her. The pain was throughout her body, but started in her hip, then to her legs, etc...She went ...
Waiting for report....
- By MelissaShuford · Posted October 29, 2009
- 0 replies
- Just waiting for Em's urine prot/creat ratio....just trace this am on urine dip....still don't understand the fluctuating.... 1+ to 4+....then back to trace....we are working the diet hard trying to increase ...
Em and I just want to Share.....
- By MelissaShuford · Posted October 29, 2009
- 2 replies
- Hey everyone, Just wanted to share with all of you, (that have been such a Blessing to Em and myself), that we so very much appreciate and respect your kindness and support. We all sure seem to share ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Diagnosis
- By mikeysps · Posted October 28, 2009
- 1 reply
- I was diagnosed in 2001 with stiff person syndrome at West Virginia University Medical Center by Dr. Ludwig Gutman. It has been a challenge the last several years. Now I see Dr. John Kissel at Ohio State ...
I have found some useful info finally about school for EMMY!!!!
- By MelissaShuford · Posted October 28, 2009
- 3 replies
- In our state we have available to our children currently starting middle school (next yr for EM) North Carolina virtual school it is computer based edu (very much like home schooling without specific ...
Jornal Entries
- By TeamKoda · Posted October 27, 2009
- 0 replies
- I blog @ www.ricknvon.blogspot.com ...
Trigeminal Neuropathy
- By derwin · Posted October 27, 2009
- 9 replies
- Hi Everybody. I just accidently deleted my journal entry and all your responses (Learning1 and Sophie Rose to be specific). So here it is again. I have Trigeminal Neuropathy from a severed nerve that ...
