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New journals

ANYONE HAVE A MIC-EY J-TUBE?????

Rodeogrl02
  • By Rodeogrl02 · Posted November 13, 2009
  • 15 replies
  • I asked my surgeon if there are any other options for J-tubes since mine is permanent for like my life. My j-tube is kinda long and hangs in the way of everything , also gets caught on tons of stuff and ...

Any advice on PH would be helpful and appreciated

MelissaShuford
  • By MelissaShuford · Posted November 13, 2009
  • 4 replies
  • Now I have to focus a little on me and some medical issues...regarding my pulmonary hypertension...what are normal pressures and when do they usually start treatment...what kinds of treatments are the ...

Monday Big Day with PH Dr

MelissaShuford
  • By MelissaShuford · Posted November 13, 2009
  • 0 replies
  • Monday is my all day long Dr visits with Heart failure clinic for a Metabolic stress test...can't breathe well now with exertion but they are gonna clamp my nose mask me and put me on a treadmill...I ...

Cinderella Emmy

MelissaShuford
  • By MelissaShuford · Posted November 12, 2009
  • 0 replies
  • My angel gets to be in her first pageant Sat...she is so excited...and we have been blessed...with a beautiful dress....and I just want her to have a enchanting nite...please pray for her!!!!!!Thank You ...

Been working on getting better...

orlando77guy
  • By orlando77guy · Posted November 12, 2009
  • 21 replies
  • Well, I have not written one of these down in a little while and there is so much that I just think I need to get out... Just like the title says I have been working on getting better, wouldn't say back ...

i have hyperaldosteronism , and they still haven't ruled out cance

jodee30
  • By jodee30 · Posted November 12, 2009
  • 1 reply
  • i'm angry i feel like no one listens to me, i have had every test under the sun and they come back with my blood work all messed up. I went thru one other endo. and the one i have now has done every testing ...

PEG Tube placement recovery ?

Rodeogrl02
  • By Rodeogrl02 · Posted November 11, 2009
  • 13 replies
  • I have a J-tube in place directly into my jejunum of my intestine (that was a huge hastle and required major surgery & exploratory anyways) Now on tuesday they are going to put a peg tube in (or g-tube ...

Good days & bad days

KAS2008
  • By KAS2008 · Posted November 9, 2009
  • 2 replies
  • Since Dec of last year I have learned to define my life, literally, in terms of "Good Day", "Bad Day". Lately the bad day's have way out numbered the good days and it gets hard to keep the faith. With ...

Mothersadvocate

mothersadvocate
  • By mothersadvocate · Posted November 9, 2009
  • 1 reply
  • I need help in finding a Dr that is specialized in Tardive dyskinesia. My Mom was given a drug called Metoclopramide/Reglan and now has TD. She was left undiagnosed for 19 months and only recently it ...

Coping with Neurological symptoms

sarahmichelle
  • By sarahmichelle · Posted November 9, 2009
  • 2 replies
  • I am so glad to have found this forum. My illness has turned my life upside down. I'm learning to cope with it and need all the support I can find. Finding this website has helped me not feel so alone ...

TheraSphere Treatment

clkempf
  • By clkempf · Posted November 9, 2009
  • 0 replies
  • Going to Mayo Clinic in Minnesota for TheraSphere treatment to TRY to shrink my 6.7cm tumor in my liver....Has anyone else had this treatment and what were ar are your results??? This is the first major ...

new and not sure where I belong

ember
  • By ember · Posted November 9, 2009
  • 0 replies
  • I was sent here from another forum. I have body wide twitching for 13 years. I see a specialist in movement disorders. I am 52. Tegretol seemed to help, but my white count dropped to low and had to stop ...

Disability

gigglebox
  • By gigglebox · Posted November 7, 2009
  • 17 replies
  • I am so so excited!!! After a year of waiting i got approved. I didn't even get the ususl first denial. I needed the insurance so bad. Now maby i can get to a doc that can be more help. Or will it be ...

a learning curve...

katherine67
  • By katherine67 · Posted November 7, 2009
  • 0 replies
  • so, even though we don't yet have a diagnosis, I'm more and more sure of my belief that my daughter is suffering from Mastocytosis. Tonight we went to the urgent care center because of her coughing and ...

Bowel Obstruction from J-tube?????

Rodeogrl02
  • By Rodeogrl02 · Posted November 6, 2009
  • 9 replies
  • I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...

My Story

chillray
  • By chillray · Posted November 4, 2009
  • 0 replies
  • DX with POTS 3 years ago. Trying to find underlying cause. POTS doctors are thinking maybe MCAD, based on improvement of symptoms with ant-histamine use. No official tests done yet. Can't find doctor ...

SO excited to share what I have found!

pwrsrg77
  • By pwrsrg77 · Posted November 4, 2009
  • 47 replies
  • I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...

ICD, LQT, low potassium

edmar
  • By edmar · Posted November 3, 2009
  • 6 replies
  • I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...

To: Pain From: Me

Nina372
  • By Nina372 · Posted November 2, 2009
  • 10 replies
  • To: Pain From: Me Well hello pain, you might not want to hear this but you have out-stayed your welcome here in my body. You are the most annoying, agitating, distracting, way to needy, company that I ...

pots/dysautonomia

Nina372
  • By Nina372 · Posted November 2, 2009
  • 15 replies
  • Does anyone here have experience or knowledge about getting a pace maker for their postural orthostatic tachycardia syndrome (pots ...

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