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New journals

Trigeminal Neuralgia

Ingo
  • By Ingo · Posted November 19, 2009
  • 0 replies
  • TRIGEMINAL NEURALGIA SURGERY I am an 81 yr old male living in Nova Scotia, Canada who was diagnosed with Trigeminal Neuralgia in May 2009 and had a Percutaneous Balloon Rhizotomy 3 weeks ago.( Oct.28 ...

So much to accomplish and happy about it!

Jerry_at_NFDF
  • By Jerry_at_NFDF · Posted November 19, 2009
  • 0 replies
  • It feels great to get the first NFDF newsletter out the door. It means that we were also able to launch others programs such as our social networking campaign, Victory Junction, the Physician search tool ...

Bad Day

naivelittlemiss
  • By naivelittlemiss · Posted November 18, 2009
  • 13 replies
  • I know with GP you have good days and bad days, but why do the bad days have to be so BAD! =[ I feel like I'm being immature but really I don't quite know how to deal with GP bad days yet. I am still ...

I am having Allergy testing in December

ann56308
  • By ann56308 · Posted November 18, 2009
  • 4 replies
  • Waiting on approval to take another antidepressant other than amitriptline for a week before some allergy testing. My internal Medicine doctor says I should be able to take some thing else. I suggested ...

Stiff Persons Syndrome

DebW
  • By DebW · Posted November 18, 2009
  • 16 replies
  • It has taken 8 months, 100 tubes of blood and enough testing that I probably glow in the dark but finally have a diagnosis. Now it is finding how to take the memory of who you were and fill the empty ...

Good Morning Levi and Wife

MaryRVF
  • By MaryRVF · Posted November 18, 2009
  • 4 replies
  • Good Morning Levi and Wife! Haven't seen a post yet this morning. I do hope you both are well this morning. We miss you! mary ...

EEOC and Discrimination

FLiceman
  • By FLiceman · Posted November 18, 2009
  • 0 replies
  • I contacted the EEOC in September, and due to heavy volume, they called me back last week. I was interviewed recently, and they will proceed with my case. Very unique, as I had to go over the nature of ...

finally a small glimmer of hope!

dizzybee
  • By dizzybee · Posted November 17, 2009
  • 7 replies
  • went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...

Arachnoid cysts and Arnold Chiari syndrome

Stefanija
  • By Stefanija · Posted November 17, 2009
  • 11 replies
  • My two year old son was just diagnosed last week with both of these. I am looking to meet others who has these or has a child who has these. I would like to find out more information and possibly hope ...

Trigeminal Neuralgia Surgery

Ingo
  • By Ingo · Posted November 17, 2009
  • 0 replies
  • TRIGEMINAL NEURALGIA SURGERY I am an 82 yr old male living in Nova Scotia, Canada who was diagnosed with Trigeminal Neuralgia in May 2009 and had a Percutaneous Balloon Rhizotomy 3 weeks ago.( Oct.28.2009 ...

Pheochromocytoma or Paraganglioma?

joyceg98
  • By joyceg98 · Posted November 17, 2009
  • 0 replies
  • Oxford Outcomes has asked us to post this notice. Oxford Outcomes is conducting a qualitative research study involving interviews with pheo/para patients in order to evaluate the clarity, relevance, and ...

COURAGE

tmichaelroche
  • By tmichaelroche · Posted November 17, 2009
  • 1 reply
  • Courage is a special kind of knowledge; the knowledge of how to fear what ought to be feared, and how not to fear what ought not be feared. From this knowledge comes an inner strength that subconsciously ...

Cinderella Emmy

MelissaShuford
  • By MelissaShuford · Posted November 17, 2009
  • 5 replies
  • Thanks for all your prayers!!!!! Emmy won 2010 Junior Miss Claremont!!!! She is so giddy and excited!!! Love to see her so happy ...

A painful existence

jhewels2
  • By jhewels2 · Posted November 16, 2009
  • 10 replies
  • I have chronic pain from several different condition but the main condition is Dercum's Disease type 3 which I have suffered from as a child until now. I am 44 yrs old and it wasn't until I was 42-43 ...

Finally home

Nina372
  • By Nina372 · Posted November 15, 2009
  • 6 replies
  • I am finally home after being in the hospital for a week. Last Friday I was sick all day and kept having black-outs. Around midnight I asked my mom to take me to the er because something felt very wrong ...

Tomorrow is the BIG Dr and many test day!!!!!

MelissaShuford
  • By MelissaShuford · Posted November 15, 2009
  • 3 replies
  • I have butterflies and a little scared but tomorrow is the day...still can't figure out how I am gonna complete the metabolic stress test...nose clamped and mask on NO OXYGEN in either...hop on a treadmill ...

would like to talk with othercaregivers

kellyjoe
  • By kellyjoe · Posted November 15, 2009
  • 0 replies
  • my husband is 41 and recently had a chemical spill at work that left him with a brain injury causing a type of dementia we have a 20 month old daughter looking for other caregivers to talk with that might ...

Hello to you all

SistaMoon
  • By SistaMoon · Posted November 15, 2009
  • 0 replies
  • Hello to all of you here. I have been working overtime. I hope everyone has a wonderful Holiday this year. I hope to find the time to read some postings and to post as well ...

post vats procedure

myrn
  • By myrn · Posted November 14, 2009
  • 0 replies
  • had vats procedure with Talc insufflation. Lung did not reinflate fully and surgeons response, I have not seen this before, Am on O2 and using spirometer. Has anyone had this type of procedure and experienced ...

An Enchanted Evening to come tonight for Ms Emmy

MelissaShuford
  • By MelissaShuford · Posted November 14, 2009
  • 1 reply
  • I am so excited for my Em....she is participating in a pageant tonight that is a fund raiser to help bring an exceptional gospel band to town that she loves...it ha s so far been a very special time for ...

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