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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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New journals
Disability
- By gigglebox · Posted yesterday at 7:52 pm
- 6 replies
- I am so so excited!!! After a year of waiting i got approved. I didn't even get the ususl first denial. I needed the insurance so bad. Now maby i can get to a doc that can be more help. Or will it be ...
a learning curve...
- By katherine67 · Posted yesterday at 1:14 am
- 0 replies
- so, even though we don't yet have a diagnosis, I'm more and more sure of my belief that my daughter is suffering from Mastocytosis. Tonight we went to the urgent care center because of her coughing and ...
Bowel Obstruction from J-tube?????
- By Rodeogrl02 · Posted November 6, 2009
- 4 replies
- I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...
My Story
- By chillray · Posted November 4, 2009
- 0 replies
- DX with POTS 3 years ago. Trying to find underlying cause. POTS doctors are thinking maybe MCAD, based on improvement of symptoms with ant-histamine use. No official tests done yet. Can't find doctor ...
SO excited to share what I have found!
- By pwrsrg77 · Posted November 4, 2009
- 16 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
ICD, LQT, low potassium
- By edmar · Posted November 3, 2009
- 1 reply
- I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...
To: Pain From: Me
- By Nina372 · Posted November 2, 2009
- 9 replies
- To: Pain From: Me Well hello pain, you might not want to hear this but you have out-stayed your welcome here in my body. You are the most annoying, agitating, distracting, way to needy, company that I ...
pots/dysautonomia
- By Nina372 · Posted November 2, 2009
- 5 replies
- Does anyone here have experience or knowledge about getting a pace maker for their postural orthostatic tachycardia syndrome (pots ...
parvovirus B19 positive--what does this mean?
- By stephanie71 · Posted November 2, 2009
- 2 replies
- Hello, my name is Stephanie. I was just told by my rheumatologist that I'm positive for parvovirus B19. He said that my exposure was not recent. What exactly does this mean? He said my level was 0.56 ...
Out Damn Spot!
- By dizzybee · Posted October 31, 2009
- 6 replies
- have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...
my oldest and her rnd
- By senecamom · Posted October 31, 2009
- 0 replies
- after going thru outpatient therapy our oldest is pain free and has no effects of the rnd. now it's not to say that it won't come back down the road but we are greatful that she is having no problems ...
RND and Yoga
- By zanypaws · Posted October 31, 2009
- 1 reply
- My daughter is 13 and has Reflex Neurovascular Dystrophe. Is there anyone out there with this condition that has had success or not with Yoga? I feel like I'm spinning my wheels ...
inspiration
- By barbear · Posted October 31, 2009
- 0 replies
- guess I'm hogging this journal thing tonite...as I'm learning to navigate this site..and it will take me a while!..I am truly inspired by the stories I'm reading...I try to put my rare disease in perspective ...
msa of the brain
- By randy1955 · Posted October 31, 2009
- 0 replies
- I have msa of the brain I have lost most of all my short term memory and now it's in my long term also my bowels doesn't work any more I have to take a shot every other day to get them to work I have ...
Eosiniphilic fasciitis
- By barbear · Posted October 31, 2009
- 0 replies
- Hello everyone..just having a whimpery, whiney day today..guess it matches the weather outside..rainy, windy, gloomy...lots of pain today..of course some of that is from a big fall took earlier in the ...
FINALLY GETTING BETTER
- By nanomary · Posted October 30, 2009
- 4 replies
- AFTER 16 MONTHS OF TERRIBLE PAIN, INFECTION AND NOT BEING ABLE TO WALK, I AM FIANNLY GETTING BETTER!!!!!! PRAISE THE LORD!!!!! THANKS FOR PRAYERS ...
Update on nausea
- By Zacolton · Posted October 30, 2009
- 7 replies
- Just an update on my previous post. My nausea is almost gone now, no idea why, just gone, but anyways I'm working slowly and carefully on reintroducing food and regaining strength. I hope now that I'm ...
Hi
- By tarlov2 · Posted October 29, 2009
- 0 replies
- Glad to be in the group ...
I have IGAn . . .
- By jbon317 · Posted October 29, 2009
- 19 replies
- this is all so new to me ...
Dercum's Disease
- By Fargo · Posted October 29, 2009
- 0 replies
- I suffer from Dercum's Disease. It takes away everything as you knew it. Your body, hobbies, work, play, hope and mind. I will see Dr. Herbst in January and am looking forward to that. I pray that she ...
