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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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New journals
Update on Tyler
- By snugglebearsmom · Posted yesterday at 11:58 pm
- 0 replies
- Tyler recently returned from his 1 year checkup at Duke with Dr. Prasad (October). There aren't any signs of further progression, same as his 9 month checkup. He is off of most of the meds, including ...
Keeping it simple
- By DebW · Posted yesterday at 11:56 pm
- 0 replies
- After doing some research today I have decided just to stay with the team inspire through the NORD group. It is because I am in the learning phase of this disorder and have a lot to learn. The only thing ...
My daughter
- By rrinke2 · Posted yesterday at 11:11 am
- 1 reply
- My 16 month old has been diagnose with PFAPA syndrome. I am looking for any information and support that is out there. We met our ID dr for the first time this week and he was helpful in telling us about ...
Happy Saturday
- By Marg · Posted yesterday at 9:11 am
- 4 replies
- It's a sunny day in central Illinois. Mike had chemo yesterday, Taxol. I looked over at him and had had red splotches on his cheek. I got a nurses attention and she came and looked. They stopped the Taxol ...
New MIC-KEY J-TUBE, and a traditional PEG TUBE??????CONFUSED!!!!!!!!!!
- By Rodeogrl02 · Posted November 20, 2009
- 10 replies
- I finally got my new low profile MIC-KEY J-tube (just j-tube right into the jejunum) and the interventional radiology put it in, the surgeon special ordered it for me since it's a permanent residence ...
Oooh the frustration!!
- By InSynchope · Posted November 20, 2009
- 1 reply
- I am really getting fed up with ignorant doctors who don't know anything about POTS! Anybody know a good autonomic specialist who accepts tricare? I am truely desperate to feel better, I can hardly function ...
Neuromyotonia/Isaac's disease
- By leapgirl068 · Posted November 20, 2009
- 1 reply
- Hello. My daughter is 12 and is currently being tested for Isaacs. I have read through many of the threads here and seem to have many of the symptoms you all have described. I am beside myself right now ...
Trigeminal Neuralgia
- By Ingo · Posted November 19, 2009
- 0 replies
- TRIGEMINAL NEURALGIA SURGERY I am an 81 yr old male living in Nova Scotia, Canada who was diagnosed with Trigeminal Neuralgia in May 2009 and had a Percutaneous Balloon Rhizotomy 3 weeks ago.( Oct.28 ...
So much to accomplish and happy about it!
- By Jerry_at_NFDF · Posted November 19, 2009
- 0 replies
- It feels great to get the first NFDF newsletter out the door. It means that we were also able to launch others programs such as our social networking campaign, Victory Junction, the Physician search tool ...
Bad Day
- By naivelittlemiss · Posted November 18, 2009
- 12 replies
- I know with GP you have good days and bad days, but why do the bad days have to be so BAD! =[ I feel like I'm being immature but really I don't quite know how to deal with GP bad days yet. I am still ...
I am having Allergy testing in December
- By ann56308 · Posted November 18, 2009
- 0 replies
- Waiting on approval to take another antidepressant other than amitriptline for a week before some allergy testing. My internal Medicine doctor says I should be able to take some thing else. I suggested ...
Stiff Persons Syndrome
- By DebW · Posted November 18, 2009
- 12 replies
- It has taken 8 months, 100 tubes of blood and enough testing that I probably glow in the dark but finally have a diagnosis. Now it is finding how to take the memory of who you were and fill the empty ...
Good Morning Levi and Wife
- By MaryRVF · Posted November 18, 2009
- 4 replies
- Good Morning Levi and Wife! Haven't seen a post yet this morning. I do hope you both are well this morning. We miss you! mary ...
EEOC and Discrimination
- By FLiceman · Posted November 18, 2009
- 0 replies
- I contacted the EEOC in September, and due to heavy volume, they called me back last week. I was interviewed recently, and they will proceed with my case. Very unique, as I had to go over the nature of ...
finally a small glimmer of hope!
- By dizzybee · Posted November 17, 2009
- 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
Arachnoid cysts and Arnold Chiari syndrome
- By Stefanija · Posted November 17, 2009
- 11 replies
- My two year old son was just diagnosed last week with both of these. I am looking to meet others who has these or has a child who has these. I would like to find out more information and possibly hope ...
Trigeminal Neuralgia Surgery
- By Ingo · Posted November 17, 2009
- 0 replies
- TRIGEMINAL NEURALGIA SURGERY I am an 82 yr old male living in Nova Scotia, Canada who was diagnosed with Trigeminal Neuralgia in May 2009 and had a Percutaneous Balloon Rhizotomy 3 weeks ago.( Oct.28.2009 ...
Pheochromocytoma or Paraganglioma?
- By joyceg98 · Posted November 17, 2009
- 0 replies
- Oxford Outcomes has asked us to post this notice. Oxford Outcomes is conducting a qualitative research study involving interviews with pheo/para patients in order to evaluate the clarity, relevance, and ...
COURAGE
- By tmichaelroche · Posted November 17, 2009
- 1 reply
- Courage is a special kind of knowledge; the knowledge of how to fear what ought to be feared, and how not to fear what ought not be feared. From this knowledge comes an inner strength that subconsciously ...
Cinderella Emmy
- By MelissaShuford · Posted November 17, 2009
- 5 replies
- Thanks for all your prayers!!!!! Emmy won 2010 Junior Miss Claremont!!!! She is so giddy and excited!!! Love to see her so happy ...
