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New discussions
RND
- By softballgirl · Posted 2:05 pm
- In Getting a diagnosis · 0 replies
- I just got diagnosed with rnd and I've had pain since I was 5 years old and now i have to wait to get into the institute has anyone been there? I'm nervous and I'd like to know what It's like there ...
Masto symptoms.. hot skin but no fever?
- By katherine67 · Posted yesterday at 12:29 am
- In Getting a diagnosis · 6 replies
- I'm working on getting a diagnosis for my 3yo daughter, Hannah. One of the things I think I'm noticing with her is that she feels very hot during a flare, but sometimes shows no fever (or it fluctuates ...
Lupus Anticoagulant some help & an intro
- By utopianaurora · Posted November 6, 2009
- In Finding emotional support · 0 replies
- *if you are looking for cost effective solutions scroll to the bottom* Hi, i am Amber. I am 23 years old, married and a college graduate in psychology. I am back in school for social work for my second ...
Lumbar pain
- By FrustratedInNJ · Posted November 5, 2009
- In Finding a doctor · 3 replies
- Hi.... I'm a 46 year old female. My issue started in 2005. I started having back pain in the lumbar region. The first step was an x-ray which showed mild disc space narrowing at L-5 and S-1, consistent ...
Differences Between Tests?
- By dianes123 · Posted November 5, 2009
- In Getting a diagnosis · 0 replies
- Can someone tell me the difference between a Pet-Scan and a Spect-Scan? Thanks for any info, Diane ...
Stiff Person Syndrome and insurances
- By mikeysps · Posted November 4, 2009
- In Medicare, medicaid and medical insurance · 2 replies
- I was diagnosed with Stiff Person Syndrome in 2001. Since becoming disabled, it seems like I have had to play doctor, researcher, insurance commissioner, political activist, etc., etc. So much for disability ...
A "wake up" call to my soul
- By tmichaelroche · Posted November 4, 2009
- In How my disease has changed my life · 0 replies
- I really appreciate everyone's comments, suggestions and inspiration. This is a great web site. I am severely depressed. My Psychologist (have been with him since 1994) was informed of my suicidal thoughts ...
Mastocytosis and H1N1 vaccine
- By Cocoapuff68 · Posted November 4, 2009
- In Finding emotional support · 2 replies
- Well as is goes I went this morning with my husband to get the H1N1 vaccine. I got my shot at 10 am this morning and it is now 2:30 pm ...so far I am crossing my fingers for no reaction. I just want to ...
I'm losing my hair!
- By faithinthenight · Posted November 3, 2009
- In How my disease has changed my life · 0 replies
- Has anyone experienced losing their hair from Prednisone? I have experienced about a 40% hair loss recently. The amount that comes out daily continues to surprise and alarm me. Been on and off Prednisone ...
Adrenalectomy, Hospital Meds
- By GingerPeaches · Posted November 3, 2009
- In Getting a diagnosis · 1 reply
- When in the hospital for an adrenalectomy, who is the overall person who coordinates and accesses your medication? Should you bring all the medication you are presently taking to the hospital? During ...
recently diagnosed - looking for advice/help/support
- By louanne · Posted November 3, 2009
- In Finding emotional support · 2 replies
- Hi, I'm recently diagosed with cerebral vasculitis after suffering a couple of TIA's and other neurological issues. Initially started on steriods and immuno suppressants which seemed to work for a couple ...
Spect Scans and unexpected Kidney
- By dianes123 · Posted November 2, 2009
- In Getting a diagnosis · 1 reply
- Hello all, I was wondering if any body could help me with a question I have regarding a spect scan I had back in Sept. of 2008. Now this spect scan was to be for my back, legs, and neck and came out to ...
Does hydrocephalus cause headaches or what?
- By gigglebox · Posted November 1, 2009
- In Getting a diagnosis · 3 replies
- So I have been having headaches for almost a year now and am getting nowhere with the docs. have had a ct and an mri. Both showed 20mm arachnoid cyst in postetior fossa and a sebaceous syst and hydrocephalus ...
What Do You DO To Help Cope With Your Dx.
- By jhewels · Posted October 31, 2009
- In Getting a diagnosis · 5 replies
- I fight each day to keep my life as normal as possible some days I may not try at all. I don't want to stop being included in things but I don't want them to expect be to do everything also. I don't want ...
Dercum's Disease life of pain
- By jhewels · Posted October 29, 2009
- In My disease has no treatment · 0 replies
- Hello I am a Dercum's patient who is trying to find anything I can about this disease to help myself and others who suffere from it. If you have painful lipomas then you probably suffer from this disease ...
diverticulosis attack???anyone???
- By mph · Posted October 28, 2009
- In Getting a diagnosis · 8 replies
- anyone get this? Seems to be related ...
mastocytosis & GI disorders?
- By mph · Posted October 28, 2009
- In My child and school · 0 replies
- Hi there. Just was in the hospital for diverculitis attack. Wish I hadnt woken up that day. Worse than childbirth. Anyone else out there with this? thankyou ...
Meningioma -
- By jmp · Posted October 26, 2009
- In Finding a doctor · 2 replies
- My sister in Eastern Connecticut has been diagnosed with an meningioma and has been told by a local neurosurgeon that it needs to be removed soon. We are trying to find a neurosurgeon who specializes ...
Help dignose me
- By skittles · Posted October 25, 2009
- In Getting a diagnosis · 16 replies
- I have continued lactic acid burn in my muscles, even in my jaw when I talk. I have it everywhere. Just before I cry the burn is there. Typing this gives me burn in my arms and hands. I cannot feel when ...
dermatographism, skin welps and itchy skin
- By shutters · Posted October 25, 2009
- In Getting a diagnosis · 0 replies
- I have dermatographism and have had for 19 years? I semi control it with antihistimines (Zyrtec at present). Does anyone out there know what causes this? My endocrinologist said that sometimes it's caused ...
