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Masto symptoms.. hot skin but no fever?
- By katherine67 · New reply 4:49 am
- Discussion in Getting a diagnosis · 6 replies
- I'm working on getting a diagnosis for my 3yo daughter, Hannah. One of the things I think I'm noticing with her is that she feels very hot during a flare, but sometimes shows no fever (or it fluctuates ...
I have IGAn . . .
- By jbon317 · New reply 1:22 am
- Journal · 18 replies
- this is all so new to me ...
anhidrosis and a raft of other oddities
- By Nan · New reply 12:50 am
- Discussion in Getting a diagnosis · 35 replies
- My 19 year old daughter cannot sweat - nor has she since birth. She tires easily and has unexplained fevers and aches and pains in her joints that come and go in clusters. We've been to every "ist" (specialist ...
Disability
- By gigglebox · New reply yesterday at 11:59 pm
- Journal · 4 replies
- I am so so excited!!! After a year of waiting i got approved. I didn't even get the ususl first denial. I needed the insurance so bad. Now maby i can get to a doc that can be more help. Or will it be ...
ICD, LQT, low potassium
- By edmar · New reply yesterday at 11:44 pm
- Journal · 1 reply
- I'm a SCA survivor, and i'm lucky to be alive again. I fainted, April 23, 2009, the reason i was rushed to the hospital. I was admitted for 12 days, and after a series of tests and investigation, my doctor ...
Cramp Fasciculation Syndrome
- By Griff · New reply yesterday at 10:13 pm
- Discussion in Getting a diagnosis · 75 replies
- For two years I have been having electric shocks in my arms and hands, muscle twitches all over, and excruciating stabbing pains in my thighs and calves. This week I was finally diagnosed with Cramp Fasciculation ...
Bowel Obstruction from J-tube?????
- By Rodeogrl02 · New reply yesterday at 9:47 pm
- Journal · 3 replies
- I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...
TRIGEMINAL NEUROPATY (NERVE DAMAGE)
- By Gary1970 · New reply yesterday at 9:31 pm
- Journal · 6 replies
- I am currently 39 years of age and until just after my 37th birthday I was free from any type of nerve pain. In March 2007, I caught a viral infection which essentially after a week attacked my right ...
"HYPOKALEMIA OR LOW POTASSIUM"
- By mandyblue · New reply yesterday at 8:02 pm
- Journal · 31 replies
- I want to share this research information in "My Journal". This is a very long collection of articles, that explains in great detail, about Hypokalemia or Low Potassium. It is for anyone who needs help ...
Looking for those with mastocytosis
- By HelenD · New reply yesterday at 2:22 pm
- Discussion in My disease has no treatment · 30 replies
- Comfort to all. I learned back in June that I have systemic mastocytosis. According the pathologist that performed my bone marrow biopsy I am the 27th confirmed case here New Mexico. Though I feel I have ...
Cancer has returned
- By bizzyfingers2009 · New reply yesterday at 1:48 pm
- Journal · 31 replies
- The fight is not over yet...Started back on chemotherapy 10/05. Carboplatin and Taxol. The road is long, and bumpy but I will make the trip ...
Conn's syndrome (hyperaldosteronism)
- By jacque · New reply yesterday at 12:34 pm
- Discussion in Finding emotional support · 97 replies
- I would like to know someone else's story about their experience with Conn's syndrome. What were their symptoms before they were finally dignosed, and what is their treatment (medication or surgery ...
Somebody PLEASE HELP!!! ={
- By pwrsrg77 · New reply yesterday at 10:54 am
- Journal · 81 replies
- Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...
symptomatic tarlov cyst surgery
- By ap12 · New reply yesterday at 8:56 am
- Journal · 20 replies
- Heard again from my neurosurgeon today. He reviewed my past MRI's with my current ones and concluded surgery sounds like the best option. My symptoms fit with S1 compression where my large tarlov cyst ...
a learning curve...
- By katherine67 · Posted yesterday at 1:14 am
- Journal · 0 replies
- so, even though we don't yet have a diagnosis, I'm more and more sure of my belief that my daughter is suffering from Mastocytosis. Tonight we went to the urgent care center because of her coughing and ...
Mastocytosis
- By Fabulous005 · New reply yesterday at 1:07 am
- Journal · 26 replies
- I have a question I'm going through some testing to see if I do indeed have any type of mastocytosis, but I started experiencing symptoms and those tan/brown spots a few years ago once I moved to this ...
indolent systemic mastocytosis
- By marcia3 · New reply yesterday at 12:38 am
- Journal · 12 replies
- I would like to communicate with someone who has indolent systemic mastocytosis. I would like to find someone who understands what I am going through. Thanks ...
To: Pain From: Me
- By Nina372 · New reply yesterday at 12:37 am
- Journal · 9 replies
- To: Pain From: Me Well hello pain, you might not want to hear this but you have out-stayed your welcome here in my body. You are the most annoying, agitating, distracting, way to needy, company that I ...
Isaac's syndrome
- By Lynn2 · New reply yesterday at 12:18 am
- Discussion in Getting a diagnosis · 1107 replies
- Does anyone have Isaac's syndrome or have a relative or friend who does? Also, if you are just knowledgeable about this disease... Thanks, Lynn ...
Is this "normal"....mood swings
- By clkempf · New reply November 6, 2009
- Journal · 12 replies
- Not the kind we had once a month but the kind that make you cry and then angry ??? I am finding out I am biting my husbands head off daily and that is not normal for me..... just diagnoised with Stage ...
