New
- By chelle68 · Posted 4:26 am
- Journal · 0 replies
- after about two year of fighting with doctors to help me find out what was going on with me and why I was in so much pain, being accused of many things. Med seeking was a big one that followed me from ...
- By shan789 · Posted yesterday at 5:59 pm
- Journal · 1 reply
- I took Jake to see the surgeon on Wednesday, and he admitted him to the hospital right away. After many test, the upper scope showed he had sever gastritis, and a very bad stomach infection. He ended ...
- By Macbeth · Posted yesterday at 12:08 pm
- Journal · 0 replies
- Is there anything in the states that is interested in Fahr's or new info. I not going without a fight ...
- By Pmorris · Posted October 9, 2008
- Journal · 8 replies
- Being 18 and only 7 months in having membranous nephropathy, it is hard. All of the medications seem to have stop working now. My condition has gotten even worse than when I first started. So now I'm ...
- By Tracietheonlyone · Posted October 9, 2008
- Discussion in Finding emotional support · 3 replies
- My daughter has KT, she is 12 She recently started having a rash which the doctor decribed as Pityriasis Rosea? Has anyone else had this... Thanks Tracie ...
- By Macbeth · Posted October 9, 2008
- Journal · 1 reply
- Mark, I'm in Ontario. Lee ...
- By Macbeth · Posted October 8, 2008
- Journal · 0 replies
- I have been recently diagnosed with Fahr's (2 weeks) ago. I'm from Canada. Not too much is known about it. I'm really upset about the whole thing. If I could talk to anyone with the disease and see if ...
- By tammysci · Posted October 8, 2008
- Journal · 22 replies
- I have read many different blogs from people with various disabilities about their frustrations with people who abuse handicap parking. I have wanted to start a handicap parking enforcement program for ...
- By walter_comer · Posted October 8, 2008
- Journal · 1 reply
- Well, as far as the shunt goes, doc says there's no hurry, and the appt. never was made. I've really stepped up the exercise, walking, running, weights, push-ups, crunches, Tai Chai, I've been feeling ...
- By bertolas · Posted October 8, 2008
- Discussion in Getting a diagnosis · 0 replies
- ANY HELP ON THIS CHILD WOULD BE GREATLY APPRECIATED THEY ARE GOOD FRIENDS AND AND THEY ARE BESIDE THEMSELVES TRYING TO FIND OUT WHAT THIS KID HAS. Hi Deb, I got as much info i could on Britney She's 11 ...
- By Donna1959 · Posted October 7, 2008
- Discussion in Finding a doctor · 0 replies
- My 24 year old daughter, who lives in Atlanta, is looking for a Dr. who has knowledge concerning this condition. Her symptoms, which range from rashes to very painful swelling of different areas at different ...
- By Muriel · Posted October 7, 2008
- Journal · 0 replies
- October 11 - South Cal L.A. - Dr. Vescio and LLS (Also Columbus Day Weekend) October 18th – New York - Dr. Jeffrey Zonder Karmanos/Detroit October 18th – Carlise, PA - 2nd annual Chip Miller Charitable ...
- By maciesmom · Posted October 7, 2008
- Journal · 2 replies
- Hi, My 10 year old daughter was diagnosed in September 2008 with Pitt Hopkins Syndrome. She is currently on Pepcid for Reflux. She tends to wake up gasping for air. She is MR severe to profound. She has ...
- By tammysci · Posted October 6, 2008
- Journal · 3 replies
- When I was first injured, it took 6 months for me to connect with another female in a wheelchair to ask her women related issues about spinal cord injury. This happens to a lot to newly injured women ...
- By Vivien · Posted October 5, 2008
- Discussion in Getting a diagnosis · 2 replies
- Hi, This is my first posting. I live in Ireland and am 46 years of age and have just been diagnosed with Spina Bifida Occulta, Tarlov cyst on s1, duplex collection system in my left kidney which is also ...
- By grannylunatic · Posted October 5, 2008
- Journal · 7 replies
- I sure wish I had pictures of me falling in a store today to send Medicare. I reached over to get a pair of socks from a shelf that was on wheels and not braced in any way. The shelf started rolling ...
- By sissybangs · Posted October 4, 2008
- Journal · 1 reply
- I joined Inspire months ago and it has taken me this long to get up the courage to post. At first I was hopeful maybe I would find people who shared my sons condition-but then I became terrified that ...
- By Tatina · Posted October 3, 2008
- Discussion in Getting a diagnosis · 0 replies
- my 80 yr old mother was misdiagnosed for 2 months with a stroke.Her weak right leg, arm and slurred speak got worse... another neuro said she didn't have stroke. Admitted to Duke and had all kinds of ...
- By tammysci · Posted October 2, 2008
- Journal · 2 replies
- On September 24th, I wrote a blog called "TIRED OF FIGHTING FOR MY RIGHTS FOR WHEELCHAIR ACCESS!” I wanted to update people on the situation. I just received a call from the property manager and they ...
- By FaithLoveHope121 · Posted October 2, 2008
- Discussion in How my disease has changed my life · 4 replies
- I have been dealing with this eye disease for about 13 years now. These last 2-3 years have proved to be the worst of them all. Not so much the disease itself but the treatments of Immuno Suppresssants ...
