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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Recommended journals
HUVS (hypocomplementemic urticarial vasculitis
- By julez68 · Posted January 3, 2009
- 4 recommendations
- my daughter is now 10 1/2 years old... after 2 years of mysterious symptoms, she was finally diagnosed with a form of systemic vasculitis... the problem is that in theory her dr's have heard of this disease ...
Feeling kinda blue
- By debinok · Posted April 7, 2008
- 4 recommendations
- I think the most difficult part of having this disease aside from the pain is the unknown. I don't know how to prepare. Both my disease descriptions have an unknown prognosis.Yet, I feel guilty because ...
SO excited to share what I have found!
- By pwrsrg77 · Posted November 4, 2009
- 3 recommendations
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
To: Pain From: Me
- By Nina372 · Posted November 2, 2009
- 3 recommendations
- To: Pain From: Me Well hello pain, you might not want to hear this but you have out-stayed your welcome here in my body. You are the most annoying, agitating, distracting, way to needy, company that I ...
Exhausted....hurting....mad
- By MelissaShuford · Posted October 8, 2009
- 3 recommendations
- I don't even know what to feel or say anymore,what to ask the Drs.,what to be concerned about (worry),what to do or not do.......this world of renal disease is overwhelming to me.....I think I understand ...
my NIH experience
- By dizzybee · Posted October 2, 2009
- 3 recommendations
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
I'm a freak
- By swtlilwamom · Posted August 14, 2009
- 3 recommendations
- Just a simple poem I thought of today I AM A FREAK You stare and point, at something new. If I am a freak, than so are you. It's ok that you dont understand But I'm just like you, with bumps on my neck ...
Cardiac Patients: Obtain record copies now
- By martzj · Posted February 24, 2009
- 3 recommendations
- Stop trusting US medical staff to take charge of your record transfers between. The odds of this happening with zero errors are not in your favor. HIPPA means that all US citizens are entitled (whether ...
Making a difference
- By mmeitz · Posted February 12, 2009
- 3 recommendations
- My brother has leukodystrophy- 4H and has to be in a wheelchair for most movement. His condition has affected the whole family as Im certain it does wherever it strikes. My goal is to help people realize ...
Billy's Disease is so rare Dr.'s are baffled after 12 months in Hospital.
- By VP4BILLY · Posted January 17, 2009
- 3 recommendations
- My son-in-law Billy has been in the hospital 12 months as of 1-6-09. Billy was a healthy 28 year old male at the time he became ill. He has 2 daughters a 3 y.o. and a 5 y.o He has a b-cell inmmunodeficiency ...
Isn't it strange...
- By ShannonZ · Posted July 22, 2008
- 3 recommendations
- that quite a few of us on here have more then one health "issue"? We ALL must be tough cookies ...
stiff person syndrome
- By patriciacamacho · Posted August 9, 2007
- 3 recommendations
- I'm a 40 year old female who was diagnosed with stiff person syndrome in January. After many years of tests and wrong diagnoses. I don't know if it was a relief to know there is really something wrong ...
Unknown Bone Marrow Problem???ANYONE????
- By Rodeogrl02 · Posted September 26, 2009
- 2 recommendations
- I'm 26 years old and this pastspring I had a bone marrow biopsy after tons of lab work, that showed my platelets and white bllod cells are always low, and occasionally by red blood cells. So we went for ...
Your Dizzy Laugh of The Day
- By Unsure · Posted August 20, 2009
- 2 recommendations
- I'm lightheaded allllll the time! Have been for years. I often say that if the cops ever pulled me over, I could never pass the drunk driving test because I'm so dizzy all the time. I remember the first ...
i think im losing my hair
- By kimikiwi1987 · Posted June 21, 2009
- 2 recommendations
- okay ive been on cyclosporine for like 3 wks now and i think im starting to lose my hair, its like one bad side effect after another.....when is this missory going to end....idk but i am glad im getting ...
My Story
- By djmtard · Posted May 15, 2009
- 2 recommendations
- My story; Imagine, you wake up one day and you are paralyzed and cant talk. That is what happened to me. I feel like I went to sleep and woke up the next day and couldn’t move. It was not one day however ...
We all have something in our lives to inspire us.
- By Nina372 · Posted May 9, 2009
- 2 recommendations
- We all have something in our lives to inspire us and sometimes I think we all need to take the time to recognize them to bring back the hope we feel for our day to day lives and not forget that even when ...
I knew the answer would be NOOO but not this fast!
- By grannylunatic · Posted May 1, 2009
- 2 recommendations
- I went for my 3 week poison, I mean Cytoxin treatment and found out Medicare turned me down for Remicade the same day they had been called! The nurse? nurse practitioner? knew I woud be befor she called ...
Best video of the week!!!!
- By Nina372 · Posted April 11, 2009
- 2 recommendations
- Please watch this video all the way through the end is the best part!! I promis it will be worth it ...
Amazing Experience
- By StephLynStill · Posted February 24, 2009
- 2 recommendations
- I have been living in the "LysoWorld" now for about six years. I started very pinpointed with one particular disorder (there are over 60 - most w/ ridiculously hard names to pronounce). It took a long ...
