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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
PCD
- By catdani · New reply October 31, 2009
- 1 reply
- We just returned from the Children's Hospital this week. They confirmed that one of my 10 year old twins has PCD. It is a relief to have a diagnosis. He has been sick since he was born and it was getting ...
inspiration
- By barbear · Posted October 31, 2009
- 0 replies
- guess I'm hogging this journal thing tonite...as I'm learning to navigate this site..and it will take me a while!..I am truly inspired by the stories I'm reading...I try to put my rare disease in perspective ...
Eosiniphilic fasciitis
- By barbear · Posted October 31, 2009
- 0 replies
- Hello everyone..just having a whimpery, whiney day today..guess it matches the weather outside..rainy, windy, gloomy...lots of pain today..of course some of that is from a big fall took earlier in the ...
I need advice and help
- By Laurenlou506 · New reply October 31, 2009
- 3 replies
- I run crosscountry and i just got outta the Childrens Institute Inpatient program about 3 weeks ago and I have been going down hill i use to be able to run about 2 miles or more and now i cant even jog ...
My doctor's are gambling with my life!!!!
- By Rodeogrl02 · New reply October 30, 2009
- 3 replies
- So if you liv in wisconsin never go to wheaton fransiscan hospitals or doctors office specialists, they obviously think your live's aren't worth much. I started going there when I was in highschool but ...
Hi
- By tarlov2 · Posted October 29, 2009
- 0 replies
- Glad to be in the group ...
Dercum's Disease
- By Fargo · Posted October 29, 2009
- 0 replies
- I suffer from Dercum's Disease. It takes away everything as you knew it. Your body, hobbies, work, play, hope and mind. I will see Dr. Herbst in January and am looking forward to that. I pray that she ...
Em and I just want to Share.....
- By MelissaShuford · New reply October 29, 2009
- 2 replies
- Hey everyone, Just wanted to share with all of you, (that have been such a Blessing to Em and myself), that we so very much appreciate and respect your kindness and support. We all sure seem to share ...
I have found some useful info finally about school for EMMY!!!!
- By MelissaShuford · New reply October 29, 2009
- 3 replies
- In our state we have available to our children currently starting middle school (next yr for EM) North Carolina virtual school it is computer based edu (very much like home schooling without specific ...
RND at 9
- By pammiek929 · Posted October 29, 2009
- 0 replies
- My daughter started to develop RND when she turned 9. She was diagnosed very quickly, so it did not disable her. The pain was throughout her body, but started in her hip, then to her legs, etc...She went ...
Waiting for report....
- By MelissaShuford · Posted October 29, 2009
- 0 replies
- Just waiting for Em's urine prot/creat ratio....just trace this am on urine dip....still don't understand the fluctuating.... 1+ to 4+....then back to trace....we are working the diet hard trying to increase ...
Bad bad day
- By shan789 · New reply October 29, 2009
- 5 replies
- I have been having sever pain the last 4 days, so I made an appt. with my doc. He first of all asked if I have tried praying or meditating my pain away. Mind you every time I breathe my left shoulder ...
HUVS (hypocomplementemic urticarial vasculitis
- By julez68 · New reply October 29, 2009
- 29 replies
- my daughter is now 10 1/2 years old... after 2 years of mysterious symptoms, she was finally diagnosed with a form of systemic vasculitis... the problem is that in theory her dr's have heard of this disease ...
Cerebral vasculitis
- By Margaussie · New reply October 27, 2009
- 4 replies
- Hi to all.Have a question that somebody maybe able to help me with.I was diagnosed with cerebral vasculitis in Jan 09.Had a few attacks since then but the last one was for 3 days with vomiting and the ...
Jornal Entries
- By TeamKoda · Posted October 27, 2009
- 0 replies
- I blog @ www.ricknvon.blogspot.com ...
mastocytosis
- By DanielleLee · New reply October 27, 2009
- 5 replies
- I am newly diagnosed with mastocytosis and would like to hear form others who have the disease and discuss what has worked for them. I am a Registered Nurse so have sime medical knowledge of the disease ...
My b-day with Emmy.....and no flu shots
- By MelissaShuford · New reply October 27, 2009
- 5 replies
- Well today's my 40 something birthday!!! I am really tired these days..... I plan on spending it with my Emmy and my husband....she will have all kinds of home made surprises all day for me .....little ...
believe whats inside not only the outside
- By nyitalian · New reply October 27, 2009
- 10 replies
- i really believe people just look at a person ,and, make judgement, well, they really dont look sick, but, they donot relize of the things they dont see,you cant judge a book by its cover, to all of us ...
BLOOD TRANSFUSION.. and retaining water at 32 weeks
- By denisehenshaw · New reply October 26, 2009
- 13 replies
- my baby was born at 29 wks and he had been doing good until he got bloodwork back today and it said he was anemic so they are doing a blod transfusion even now as I write this.. I am so concerned.. as ...
Emmy checking in...
- By MelissaShuford · New reply October 26, 2009
- 2 replies
- Emmy's protein was on am dip 4+ then, 2+ and 2+, but my question is if she voids during the nite is this still an accurate measurement? I know with 24hr urine's we always had to count every drop in the ...
