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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
Is my J-tube Mic-Key button suppost to rotate????
- By Rodeogrl02 · New reply November 24, 2009
- 1 reply
- My mic-key j-tube (just j-tube in the jejunum) keeps turning around a bit, interventional radiology wasn't sure if the size they put in would be correct that it was just a little small and I might need ...
graves disease
- By lisajo · New reply November 24, 2009
- 20 replies
- I go to the endocrenologist in october they couldnt get me in any sooner .I have a bulging eyeball and my thyroid is underactive and not responding to the thyrixozine(synthroid) and I am in so much pain ...
mecp2 duplication
- By Matocu · New reply November 24, 2009
- 1 reply
- My 9 year old DAUGHTER suffers from a delayed maturation. After performing a complete genetic examination, has been diagnosed with a doubling of about 438 kilobases discontinuous in the Xq28 chromosomal ...
Question to anyone who would know ..
- By shortstuff · Posted November 24, 2009
- 0 replies
- Can or does R.A. cause loss of sleep ...
Update on nausea
- By Zacolton · New reply November 24, 2009
- 8 replies
- Just an update on my previous post. My nausea is almost gone now, no idea why, just gone, but anyways I'm working slowly and carefully on reintroducing food and regaining strength. I hope now that I'm ...
Stiff Persons Syndrome
- By DebW · New reply November 23, 2009
- 16 replies
- It has taken 8 months, 100 tubes of blood and enough testing that I probably glow in the dark but finally have a diagnosis. Now it is finding how to take the memory of who you were and fill the empty ...
Happy Saturday
- By Marg · New reply November 23, 2009
- 7 replies
- It's a sunny day in central Illinois. Mike had chemo yesterday, Taxol. I looked over at him and had had red splotches on his cheek. I got a nurses attention and she came and looked. They stopped the Taxol ...
IS THERE A BETTER WAY TO GET THE BILE OUT OF MY PEG TUBE????
- By Rodeogrl02 · New reply November 23, 2009
- 2 replies
- I had a PEG tube put in last tuesday to use as a vent for air and drainage of bile that otherwise would not leave my stomach (there is a ton of it built up) While i was in the hospital for 3 days they ...
severe lower back pain/left front leg pain/numbness
- By jstyoly · New reply November 23, 2009
- 32 replies
- hello, I have been suffering from severe lower back pain since 1st week of Feb'09 it has caused me to have to take a medical leave from work. I have had 3 epidural spine injections, 1 facet joint injection ...
7 year old daughters 'medical mystery'
- By fairymum · New reply November 23, 2009
- 29 replies
- I really don't even know where to start. I am new to this site and am desparately searching for answers - maybe someone out there will read this and have information to benefit us. I will start from the ...
Federal funding for research on SPS???
- By DebW · Posted November 23, 2009
- 0 replies
- I am sure this has been explored many times but I had to ask. It seems like the government can send money to bail out everything else, is is possible to ask for grant money for research that would go ...
Bad Day
- By naivelittlemiss · New reply November 22, 2009
- 13 replies
- I know with GP you have good days and bad days, but why do the bad days have to be so BAD! =[ I feel like I'm being immature but really I don't quite know how to deal with GP bad days yet. I am still ...
Update on Tyler
- By snugglebearsmom · New reply November 22, 2009
- 3 replies
- Tyler recently returned from his 1 year checkup at Duke with Dr. Prasad (October). There aren't any signs of further progression, same as his 9 month checkup. He is off of most of the meds, including ...
Oooh the frustration!!
- By InSyncopy · New reply November 22, 2009
- 3 replies
- I am really getting fed up with ignorant doctors who don't know anything about POTS! Anybody know a good autonomic specialist who accepts tricare? I am truely desperate to feel better, I can hardly function ...
Keeping it simple
- By DebW · Posted November 21, 2009
- 0 replies
- After doing some research today I have decided just to stay with the team inspire through the NORD group. It is because I am in the learning phase of this disorder and have a lot to learn. The only thing ...
TPN tube at night (scared 17 yr. old)
- By naivelittlemiss · New reply November 21, 2009
- 17 replies
- I am still very new to Gastroparesis, as when it was discoved I had it it was around late August/early September. In the beginning the no "real" food diet (AKA: liquid diet) is hard to deal with but I ...
Neuropathy?
- By dianes123 · New reply November 21, 2009
- 10 replies
- Hello all, I know I have not belong to this forum for a long time but I need some help managing some of the side effects of what is left of my back. I am not even sure if I am putting this in the right ...
Arachnoid cysts and Arnold Chiari syndrome
- By Stefanija · New reply November 21, 2009
- 11 replies
- My two year old son was just diagnosed last week with both of these. I am looking to meet others who has these or has a child who has these. I would like to find out more information and possibly hope ...
Trigeminal Nerve Damage
- By neversame · New reply November 21, 2009
- 54 replies
- Hello to all sufferers. Used to be happy, outgoing, adventurous and PAIN FREE until March, 2004. I had a root canal done by a dentist that must have wanted to milk my full coverage dental insurance. All ...
finally a small glimmer of hope!
- By dizzybee · New reply November 21, 2009
- 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
