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Active journals

Bowel Obstruction from J-tube?????

Rodeogrl02
  • By Rodeogrl02 · New reply 3:01 pm
  • 2 replies
  • I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...

Cancer has returned

bizzyfingers2009
  • By bizzyfingers2009 · New reply 1:48 pm
  • 31 replies
  • The fight is not over yet...Started back on chemotherapy 10/05. Carboplatin and Taxol. The road is long, and bumpy but I will make the trip ...

Somebody PLEASE HELP!!! ={

pwrsrg77
  • By pwrsrg77 · New reply 10:54 am
  • 81 replies
  • Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...

symptomatic tarlov cyst surgery

ap12
  • By ap12 · New reply 8:56 am
  • 20 replies
  • Heard again from my neurosurgeon today. He reviewed my past MRI's with my current ones and concluded surgery sounds like the best option. My symptoms fit with S1 compression where my large tarlov cyst ...

I have IGAn . . .

jbon317
  • By jbon317 · New reply 6:04 am
  • 17 replies
  • this is all so new to me ...

a learning curve...

katherine67
  • By katherine67 · Posted 1:14 am
  • 0 replies
  • so, even though we don't yet have a diagnosis, I'm more and more sure of my belief that my daughter is suffering from Mastocytosis. Tonight we went to the urgent care center because of her coughing and ...

Mastocytosis

Fabulous005
  • By Fabulous005 · New reply 1:07 am
  • 26 replies
  • I have a question I'm going through some testing to see if I do indeed have any type of mastocytosis, but I started experiencing symptoms and those tan/brown spots a few years ago once I moved to this ...

indolent systemic mastocytosis

marcia3
  • By marcia3 · New reply 12:38 am
  • 12 replies
  • I would like to communicate with someone who has indolent systemic mastocytosis. I would like to find someone who understands what I am going through. Thanks ...

To: Pain From: Me

Nina372
  • By Nina372 · New reply 12:37 am
  • 9 replies
  • To: Pain From: Me Well hello pain, you might not want to hear this but you have out-stayed your welcome here in my body. You are the most annoying, agitating, distracting, way to needy, company that I ...

Is this "normal"....mood swings

clkempf
  • By clkempf · New reply yesterday at 10:27 pm
  • 12 replies
  • Not the kind we had once a month but the kind that make you cry and then angry ??? I am finding out I am biting my husbands head off daily and that is not normal for me..... just diagnoised with Stage ...

School = feeling horrible. need advice

Nina372
  • By Nina372 · New reply yesterday at 9:56 pm
  • 12 replies
  • I go to the University of New Mexico it’s been about a month since I have started my classes and it is HARD I am taking 14 credit hours. I am always worried I will pass out on campus as I almost did ...

pots/dysautonomia

Nina372
  • By Nina372 · New reply yesterday at 8:59 pm
  • 5 replies
  • Does anyone here have experience or knowledge about getting a pace maker for their postural orthostatic tachycardia syndrome (pots ...

Trying to live with Trigeminal nerve pain after dental trauma procedure ,

BABYTBEAR
  • By BABYTBEAR · New reply yesterday at 7:50 pm
  • 5 replies
  • The more I read and study , the more I realize I am not alone ,,, I have spent 14 months looking ,begging ,praying , crying, reading and paying for help with no dental insurance or medical insurance ...

SO excited to share what I have found!

pwrsrg77
  • By pwrsrg77 · New reply yesterday at 6:22 pm
  • 15 replies
  • I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...

TRIGEMINAL NEUROPATY (NERVE DAMAGE)

Gary1970
  • By Gary1970 · New reply yesterday at 3:01 pm
  • 5 replies
  • I am currently 39 years of age and until just after my 37th birthday I was free from any type of nerve pain. In March 2007, I caught a viral infection which essentially after a week attacked my right ...

Trigeminal Neuropathy

derwin
  • By derwin · New reply yesterday at 2:50 pm
  • 3 replies
  • Hi Everybody. I just accidently deleted my journal entry and all your responses (Learning1 and Sophie Rose to be specific). So here it is again. I have Trigeminal Neuropathy from a severed nerve that ...

Stiff Person Syndrome

BravesLover
  • By BravesLover · New reply yesterday at 10:54 am
  • 28 replies
  • I have met some very good friends through this web site and they all suffer from the same disease that I do SPS. I would like to talk to anyone else who has this disease. Tina ...

nerve root sheath tumor

aware
  • By aware · New reply yesterday at 9:03 am
  • 3 replies
  • I have been having severe pain in my groin on the right hand side. Was told that it was probably a trapped nerve after an internal operation showed nothing wrong inside. I had an ultra sound done for ...

Stiff Person Syndrome

Anisah-Flower
  • By Anisah-Flower · New reply November 5, 2009
  • 7 replies
  • I would like to know from all that have a diagnosis of Stiff Person Syndrome, how long have you been diagnosed? I would also like to know if it was your first diagnoses. Anisah Flower ...

My Story

chillray
  • By chillray · Posted November 4, 2009
  • 0 replies
  • DX with POTS 3 years ago. Trying to find underlying cause. POTS doctors are thinking maybe MCAD, based on improvement of symptoms with ant-histamine use. No official tests done yet. Can't find doctor ...

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