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Welcome to Inspire!
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Active journals
New MIC-KEY J-TUBE, and a traditional PEG TUBE??????CONFUSED!!!!!!!!!!
- By Rodeogrl02 · Posted 7:22 pm
- 0 replies
- I finally got my new low profile MIC-KEY J-tube (just j-tube right into the jejunum) and the interventional radiology put it in, the surgeon special ordered it for me since it's a permanent residence ...
SO excited to share what I have found!
- By pwrsrg77 · New reply 5:53 pm
- 41 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
7 year old daughters 'medical mystery'
- By fairymum · New reply 5:44 pm
- 28 replies
- I really don't even know where to start. I am new to this site and am desparately searching for answers - maybe someone out there will read this and have information to benefit us. I will start from the ...
Neuromyotonia/Isaac's disease
- By leapgirl068 · New reply 5:26 pm
- 1 reply
- Hello. My daughter is 12 and is currently being tested for Isaacs. I have read through many of the threads here and seem to have many of the symptoms you all have described. I am beside myself right now ...
Oooh the frustration!!
- By InSynchope · Posted 4:47 pm
- 0 replies
- I am really getting fed up with ignorant doctors who don't know anything about POTS! Anybody know a good autonomic specialist who accepts tricare? I am truely desperate to feel better, I can hardly function ...
finally a small glimmer of hope!
- By dizzybee · New reply 1:29 pm
- 6 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
Arachnoid cysts and Arnold Chiari syndrome
- By Stefanija · New reply 11:51 am
- 10 replies
- My two year old son was just diagnosed last week with both of these. I am looking to meet others who has these or has a child who has these. I would like to find out more information and possibly hope ...
Stiff Persons Syndrome
- By DebW · New reply 11:47 am
- 9 replies
- It has taken 8 months, 100 tubes of blood and enough testing that I probably glow in the dark but finally have a diagnosis. Now it is finding how to take the memory of who you were and fill the empty ...
PEG Tube placement recovery ?
- By Rodeogrl02 · New reply 10:22 am
- 13 replies
- I have a J-tube in place directly into my jejunum of my intestine (that was a huge hastle and required major surgery & exploratory anyways) Now on tuesday they are going to put a peg tube in (or g-tube ...
Disability
- By gigglebox · New reply 1:54 am
- 17 replies
- I am so so excited!!! After a year of waiting i got approved. I didn't even get the ususl first denial. I needed the insurance so bad. Now maby i can get to a doc that can be more help. Or will it be ...
Bad Day
- By naivelittlemiss · New reply yesterday at 9:30 pm
- 12 replies
- I know with GP you have good days and bad days, but why do the bad days have to be so BAD! =[ I feel like I'm being immature but really I don't quite know how to deal with GP bad days yet. I am still ...
Neuropathy?
- By dianes123 · New reply yesterday at 5:43 pm
- 7 replies
- Hello all, I know I have not belong to this forum for a long time but I need some help managing some of the side effects of what is left of my back. I am not even sure if I am putting this in the right ...
msa of the brain
- By randy1955 · New reply yesterday at 1:45 pm
- 1 reply
- I have msa of the brain I have lost most of all my short term memory and now it's in my long term also my bowels doesn't work any more I have to take a shot every other day to get them to work I have ...
Trigeminal Neuralgia
- By Ingo · Posted yesterday at 1:17 pm
- 0 replies
- TRIGEMINAL NEURALGIA SURGERY I am an 81 yr old male living in Nova Scotia, Canada who was diagnosed with Trigeminal Neuralgia in May 2009 and had a Percutaneous Balloon Rhizotomy 3 weeks ago.( Oct.28 ...
Good Morning Levi and Wife
- By MaryRVF · New reply yesterday at 9:41 am
- 4 replies
- Good Morning Levi and Wife! Haven't seen a post yet this morning. I do hope you both are well this morning. We miss you! mary ...
So much to accomplish and happy about it!
- By Jerry_at_NFDF · Posted yesterday at 8:45 am
- 0 replies
- It feels great to get the first NFDF newsletter out the door. It means that we were also able to launch others programs such as our social networking campaign, Victory Junction, the Physician search tool ...
severe lower back pain/left front leg pain/numbness
- By jstyoly · New reply yesterday at 12:35 am
- 27 replies
- hello, I have been suffering from severe lower back pain since 1st week of Feb'09 it has caused me to have to take a medical leave from work. I have had 3 epidural spine injections, 1 facet joint injection ...
Finally home
- By Nina372 · New reply November 18, 2009
- 6 replies
- I am finally home after being in the hospital for a week. Last Friday I was sick all day and kept having black-outs. Around midnight I asked my mom to take me to the er because something felt very wrong ...
I am having Allergy testing in December
- By ann56308 · Posted November 18, 2009
- 0 replies
- Waiting on approval to take another antidepressant other than amitriptline for a week before some allergy testing. My internal Medicine doctor says I should be able to take some thing else. I suggested ...
Cinderella Emmy
- By MelissaShuford · New reply November 18, 2009
- 5 replies
- Thanks for all your prayers!!!!! Emmy won 2010 Junior Miss Claremont!!!! She is so giddy and excited!!! Love to see her so happy ...
