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NEW FRIENDS THANK YOU

mandyblue
  • By mandyblue · New reply yesterday at 9:07 pm
  • 6 replies
  • Being new to these groups, I want to thank everyone of you who accepted being my friend. I want to talk to each and everyone one of you. It may take me a couple of days as I am freshly out of the hospital ...

invitation to join internaf

data2
  • By data2 · Posted yesterday at 8:06 pm
  • 0 replies
  • Hi, My name is Michel Beaudet, I'm 47, have FA and live in Quebec, Canada. I'm sending this message to invite people to join a list for those with ataxia. The list is called Internaf and there's also ...

more dumb doctor stories

dizzybee
  • By dizzybee · New reply yesterday at 3:20 pm
  • 9 replies
  • I think I had a heart attack, pretty dang sure. Chest pain, numbness in left arm and left side of face. Had hubby drive me to fire station (around the corner) they were getting bps of 136/114 132/112 ...

Dwarfism

liebchen1
  • By liebchen1 · New reply yesterday at 1:16 pm
  • 1 reply
  • I am wanting to communicate with other parents who are raising a child with dwarfism. My son is 2 years old and a joy to us his parents. I welcome the chance to share stories, struggles, and successes ...

All of Me, Nothing of Me

blueriver
  • By blueriver · New reply yesterday at 11:48 am
  • 15 replies
  • I am an extrovert and love people, yet I shy away and cave myself in. I live in constant sorrow yet, I enjoy my good sense of humor and love to laugh with others. I hardly eat, yet I am well over weight ...

V.I.D.S and mercury poisoning

Ragna
  • By Ragna · New reply yesterday at 6:16 am
  • 4 replies
  • my daughter has a mercury poisoning and vaccination induced disease syndrome,has anyone in here had the same diagnoses ...

Fahr's Disease

Macbeth
  • By Macbeth · New reply January 7, 2009
  • 15 replies
  • I have been recently diagnosed with Fahr's (2 weeks) ago. I'm from Canada. Not too much is known about it. I'm really upset about the whole thing. If I could talk to anyone with the disease and see if ...

Jake/ NG tube gone

shan789
  • By shan789 · New reply January 7, 2009
  • 17 replies
  • Finally The General(NG tube) is gone. The GI pulled it today, she also said if his surgeon agrees he could return to school after winter break. He is one happy kid. He is still onlt eating 900 calories ...

Isaacs Syndrome

screamer
  • By screamer · Posted January 7, 2009
  • 0 replies
  • Well I am hearing from the people on this site that it sounds like I have Isaacs syndrome. After looking through the threads I have to agree it fits. I just have to get a diagnosis again. first fibromyalgia ...

worried mom

bonn250
  • By bonn250 · New reply January 6, 2009
  • 7 replies
  • my 7 year old daughter has had fevers every4-6 weeks since she was 4.5 years old she also has swollen lymph nodes,mouth ulcers,rashes,& joint pain. This last 7-10 days. The Drs. think it might be hibernian ...

Gait problems & Stiff Person Syndrome (SPS)... Any hope?

serendipity
  • By serendipity · New reply January 6, 2009
  • 61 replies
  • I have found quite a few other postings regarding SPS, so I would like to share this and am hopeful that some of you can offer your input.... I am posting this in all of the Groups to which I belong in ...

Amyloidosis Support Groups and Osteoporosis

Muriel
  • By Muriel · Posted January 6, 2009
  • 0 replies
  • Following are some interesting links from the Mayo Clinic in Rochester Minnesota about osteoporosis: http://www.mayoclinic.com/health/osteopo rosis/DS00128 http://www.mayoclinic.com/health/osteopo rosis/WO00048 ...

Nothing to do with my health, but I am STRESSED OUT!

terpgirl
  • By terpgirl · New reply January 6, 2009
  • 13 replies
  • I really need to vent. My boyfriend and I have been together over four years, and known each other for eight. We've always had our ups and downs as any relationship does. Things got really stressful when ...

Kidney biopsy

dizzybee
  • By dizzybee · New reply January 6, 2009
  • 1 reply
  • I'm scheduled to have a kidney biopsy w/n the next few days/weeks (just saw my neph today, so don't have the date yet). My creatinine level has went from 1.55 in Oct to 1.90 in Dec. I've had an ultrasound ...

What to give up for New Years?

Tamyra
  • By Tamyra · New reply January 5, 2009
  • 2 replies
  • This is a hard thing to think about, when you have given up most every thing you know for the sake of illness. Illness some how changes our lives and all we thought we knew. So how can I do this? I will ...

I am sooooo tired...

ShannonZ
  • By ShannonZ · New reply January 4, 2009
  • 6 replies
  • of being sick, and tired and never feeling well what so ever:( I know I am having a little pitty party but I have to do that every so often. The doctors need to come up with a miricle druck for all of ...

Sadness

SilverStar
  • By SilverStar · New reply January 4, 2009
  • 20 replies
  • In less than two months I have had a sudden stroke, diagnosed with a rare degenrative disease (pemphigoid) that could cost me my sight and could be lurking elsewhere in my body... and my husband walks ...

my son,Evan Michael Stephens

krystel
  • By krystel · New reply January 4, 2009
  • 1 reply
  • my son Evan has a rare bone disease called "Langerhans Cell Histiocytosis.and im trying to find other familys with children with the same disease.Evan is three years old,we fond out last january and i ...

What is wrong with the medical community.....?

dizzybee
  • By dizzybee · New reply January 4, 2009
  • 15 replies
  • I am just ranting here, letting off some steam. But, it seems everytime I turn on the tv there is a new show on mystery illnesses and how time after time the patient is turned away, usually with a script ...

HUVS (hypocomplementemic urticarial vasculitis

julez68
  • By julez68 · Posted January 3, 2009
  • 0 replies
  • my daughter is now 10 1/2 years old... after 2 years of mysterious symptoms, she was finally diagnosed with a form of systemic vasculitis... the problem is that in theory her dr's have heard of this disease ...

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