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Journals
ALD
- By marinemomkerry · Posted October 11, 2009
- 1 reply
- my 9 year old son had a bone marrow transplant almost a year ago. while i hope for more the reality is in front of me, he has lost pretty much everything but he does laugh and smile and is easily pleased ...
I think I may have a J-Tube Problem
- By Rodeogrl02 · Posted October 11, 2009
- 4 replies
- I've had my J-tube (right into my intestine) for 4 months now, I have had severe nausea and diarrhe for the past few weeks. Anyways, it was replaced about a week ago thru interventional radiology, it ...
10/11/2009
- By Silverfox · Posted October 11, 2009
- 0 replies
- Good Morning Everyone! Sundays are my only day off! So, you can imagine I have many things to get done. I thought I would work alittle on my profile this morning before I get started with my day. Let ...
Netherlands VHL meeting
- By joyceg98 · Posted October 11, 2009
- 2 replies
- I flew to Europe on Thursday night, arriving Friday morning in Brussels, where I was met by a friend of Chris Hendrickx, the chairperson for Belgium. I stayed with Chris and her husband near Antwerp for ...
2:41 am and I want to be a brat!!!
- By spiritlove · Posted October 11, 2009
- 38 replies
- An hour ago I had one of those frightening, choking attacks, my heart was throbbing, it felt like my throat was going to rip open and it was a struggle to get all the velcro off. I've been battling this ...
Sudden onset of Nausea and diarrhea
- By Rodeogrl02 · Posted October 10, 2009
- 3 replies
- I've been on tube TPN at night for 4 months now, the first couple of months were okay, but now i'm so nauseated like there is something a lump in my throat and I feel like I am going to vomit but there ...
PCD
- By catdani · Posted October 10, 2009
- 1 reply
- We just returned from the Children's Hospital this week. They confirmed that one of my 10 year old twins has PCD. It is a relief to have a diagnosis. He has been sick since he was born and it was getting ...
YES!!!!! God answers prayers......thank you all for praying for EMMY
- By MelissaShuford · Posted October 10, 2009
- 10 replies
- Emmy's neph called today said her urine cr/prot ratio was 0.3 a huge difference from before!!!!!!! Praise the Lord!!!!! Now, we have to find the solutions to the other issues of her decreased white blood ...
19 years old. alone??
- By Nina372 · Posted October 9, 2009
- 23 replies
- I am 19 years old and sometimes feel as though there is nobody else my age who knows what I go through. I know many other people who understand what I have to face every day and the difficulties involved ...
....
- By Ieva · Posted October 9, 2009
- 0 replies
- I am recovering from breast reconstruction. Luckily enough done for relatively small sum of money. Most likely because surgeon convinced officials that he needs more patients to gain experience and be ...
SICK WITH SICK CHILDREN
- By pie830s · Posted October 9, 2009
- 6 replies
- IT ALL STARED WHEN MY DAUGHTER WAS BORN. SHE WAS BORN AT 35 WEEKS OLD, 7LB 2 OZ. SHE WAS BIG TO BE A SO EARLY. SHE WASN'T BREATHING, SHE HAD FUILD IN HER LUNGS. THEY GOT HER BREATHING AND SINCE HER OFF ...
starting to put it all together...
- By katherine67 · Posted October 9, 2009
- 1 reply
- so today I've found a lot of good information concerning Hannah's issues. In the last couple of weeks I've found a STRONG link to vitamin D deficiency. Now I'm finding that the Zyrtec I've had her on ...
TPN tube at night (scared 17 yr. old)
- By naivelittlemiss · Posted October 8, 2009
- 17 replies
- I am still very new to Gastroparesis, as when it was discoved I had it it was around late August/early September. In the beginning the no "real" food diet (AKA: liquid diet) is hard to deal with but I ...
Exhausted....hurting....mad
- By MelissaShuford · Posted October 8, 2009
- 29 replies
- I don't even know what to feel or say anymore,what to ask the Drs.,what to be concerned about (worry),what to do or not do.......this world of renal disease is overwhelming to me.....I think I understand ...
Mastocytosis Society Canada publishes paper
- By cattoy · Posted October 7, 2009
- 1 reply
- The paper was published in a journal by University of Toronto. Here is direct link:- http://www.utsc.utoronto.ca/~womenshealt h/womenshealth/contents8.2.html Just scroll down the page to the article "Thousand ...
Hyperinsulinism
- By Hyperinsulinism · Posted October 7, 2009
- 0 replies
- What is Congenital HI? Congenital hyperinsulinism (HI) is a disorder in which the insulin cells of the pancreas (beta cells) secrete too much insulin and at the wrong time. Excess insulin causes low blood ...
Cancer has returned
- By bizzyfingers2009 · Posted October 7, 2009
- 31 replies
- The fight is not over yet...Started back on chemotherapy 10/05. Carboplatin and Taxol. The road is long, and bumpy but I will make the trip ...
Starting A New Life With An Illness
- By Poetessa · Posted October 7, 2009
- 14 replies
- After leaving a very unhappy and unhealthy marriage a year a go it hit me.... " Oh God, who on Earth would want to be with me now?? I am sick, I have out lived my usefulness. What moron would want to ...
symptomatic tarlov cyst surgery
- By ap12 · Posted October 7, 2009
- 25 replies
- Heard again from my neurosurgeon today. He reviewed my past MRI's with my current ones and concluded surgery sounds like the best option. My symptoms fit with S1 compression where my large tarlov cyst ...
see Stu run, run Stu run.
- By stutower · Posted October 6, 2009
- 3 replies
- Just sittin back enjoy my 15th or 16th year of refractory stytemic sarcoidosis. Kinda fun really, waitin to see what it'll take out next, and when will it hit something really vital, hmmm maybe I should ...
