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Welcome to Inspire!
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Journals
Goodsearch Charity of the Day.
- By walter_comer · Posted October 15, 2009
- 0 replies
- Friday, 10/16/, The Erdheim-Chester Global Alliance through The Histiocytosis Assoc. of Amer. will be the Charity of the Day at Goodsearch.com ...
cramp fasiculation syndrome
- By whattess · Posted October 15, 2009
- 14 replies
- In addition to that diagnosis, the Dr also said I had hypersensitive peripheral nerve disorder. They kind of sound like the same thing to me. I belive mine actually started about one year and 3 months ...
Stiff Man Syndrome
- By Blows · Posted October 15, 2009
- 12 replies
- I think this is the first entry from the UK. So I will start with a big Hi to all you USA stiffies. The only difference between us is that you get better weather over the pond. (It must be true when people ...
FORMER METS CATCHER - ED HEARN'S BATTLE IS THE STUFF OF HEROES
- By mwl_NCF · Posted October 14, 2009
- 0 replies
- Originally published in the New York Daily News on Saturday, October 10, 2009. (By Wayne Coffey, NY Daily News Sports Writer) Maybe you remember Ed Hearn. He played in 49 games and hit .265 as a bespectacled ...
cecostomy/backed up?
- By shan789 · Posted October 13, 2009
- 8 replies
- The last 3 nights when Jake does his flush he is getting a lot of the solution leaking out around his tube. He has also had a lot of thick smelly poo leaking out. He has also had some smearing the last ...
Almost back to my "normal"
- By spiritlove · Posted October 13, 2009
- 6 replies
- Well, hope this gets posted. Wrote a long one and accidentally deleted! Thanks everyone for soothing my brat. I'm doing better and haven't quite figured out what I'll do. Don't feel right asking for delivery ...
syringomyelia,degenerative disc disease,spinalstenosis
- By cyndiloo67 · Posted October 13, 2009
- 3 replies
- i also have symptoms of chari &tarlov cysts .am in the process of diagnosed ...hard to find a quack to do that ...you almost have to doctor yourself nowadays. they dont take time to look @ your films ...
FRIENDS
- By 1955-53 · Posted October 13, 2009
- 2 replies
- I have been inspired by so many people on this web site. I have sent many invitations for adding friends because just sharing (no matter what disease we have) has helped me tremendously because we are ...
No protein
- By MelissaShuford · Posted October 13, 2009
- 9 replies
- yeah i have no protein today!!!!!!! off to school i go...have a great day... God bless you...love emmy ...
Recurrent Stoma granulation tissue problems and diarrhea issues w/ j-tube
- By Rodeogrl02 · Posted October 12, 2009
- 10 replies
- I keep getting these intestional looking things that my surgeon says are granulation tissue that form a bubley like thing nect to my stoma of my j-tube coming like from in the tract. I've been in literally ...
Visit to Netherlands
- By joyceg98 · Posted October 12, 2009
- 0 replies
- Sunday and Monday I have met with a series of physicians here in the Netherlands, talking about how VHL is managed here, and learning from their experiences. In the Netherlands there are two primary centers ...
Interviewing New Pediatricians
- By MelissaShuford · Posted October 12, 2009
- 0 replies
- Today starts my interviewing of possible new Peds. for Emmy...I have prayed and the Lord will bless me with making the best choice that will best suit her needs...still in the process of deciding to home ...
Cyber Angels in the little Blue Trimmed Box
- By MelissaShuford · Posted October 12, 2009
- 0 replies
- This little box has amazing power....it has brought me peace from overwhelming sadness...acknowledgement of my incredible fear of the unknown...acceptance of what we have been given... and to believe ...
Another year gone by
- By junimead · Posted October 12, 2009
- 4 replies
- So I didn't write in on my anniversary this year, not because it wasn't on my mind, but because I have too much going on some days to write. Another year's gone by, a few more stays in the hospital and ...
ALD
- By marinemomkerry · Posted October 11, 2009
- 1 reply
- my 9 year old son had a bone marrow transplant almost a year ago. while i hope for more the reality is in front of me, he has lost pretty much everything but he does laugh and smile and is easily pleased ...
I think I may have a J-Tube Problem
- By Rodeogrl02 · Posted October 11, 2009
- 4 replies
- I've had my J-tube (right into my intestine) for 4 months now, I have had severe nausea and diarrhe for the past few weeks. Anyways, it was replaced about a week ago thru interventional radiology, it ...
10/11/2009
- By Silverfox · Posted October 11, 2009
- 0 replies
- Good Morning Everyone! Sundays are my only day off! So, you can imagine I have many things to get done. I thought I would work alittle on my profile this morning before I get started with my day. Let ...
Netherlands VHL meeting
- By joyceg98 · Posted October 11, 2009
- 2 replies
- I flew to Europe on Thursday night, arriving Friday morning in Brussels, where I was met by a friend of Chris Hendrickx, the chairperson for Belgium. I stayed with Chris and her husband near Antwerp for ...
2:41 am and I want to be a brat!!!
- By spiritlove · Posted October 11, 2009
- 38 replies
- An hour ago I had one of those frightening, choking attacks, my heart was throbbing, it felt like my throat was going to rip open and it was a struggle to get all the velcro off. I've been battling this ...
Sudden onset of Nausea and diarrhea
- By Rodeogrl02 · Posted October 10, 2009
- 3 replies
- I've been on tube TPN at night for 4 months now, the first couple of months were okay, but now i'm so nauseated like there is something a lump in my throat and I feel like I am going to vomit but there ...
