First of all I just wanted to say thank you to everyone who replied to my last post. I think I was a little overly emotional when I posted that entry, but no it wasn't a cry for help or anything of the sort. I just needed to simply vent.
Still waiting to go up to NIH. Final paperwork is being done and plans are almost complete. I've been an idiot looking up videos on YouTube of the surgery I'll be having. I am curious as to where exactly the incision will be?
I'm a "special case" of VHL. Only one known in the world to have a certain something besides VHL and NIH is going to study me for it and also help me with my other disorder. It's not something I talk about openly. Infact I hate it about myself and wish I could be different...but it is what it is and maybe one day I'll share what it is here and maybe I won't.
Well, my thoughts are all over the place right now and maybe later I won't be too lazy to post a few. Think I'd rather go listen to The Beatles for awhile instead. Later
Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Support and Other Things
- By FridayThe13th
- Posted June 18, 2009 at 8:22 pm · 2 replies
- Shared with the public
0 Recommendations
