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I am 49 yrs old and live in the south of England, I have been diagnosed with Cerebral Vasculitis and have had 3 strokes and have been to 3 different hospitals everyone has been kind but not very informative, this is a strange thing and most doctors just shrugg thier shoulders when you ask anything, the medication is major and still not sure what is causing my symptoms, CV, stroke or medication, would really love to discuss with others no matter where to get some help and advise, will be seeing the consultant soon and in process of making a list of things to ask, but very concened when the steriods are reduced as this seems to cause problems and relapses...so will be glad to discuss thanks
