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guess I'm hogging this journal thing tonite...as I'm learning to navigate this site..and it will take me a while!..I am truly inspired by the stories I'm reading...I try to put my rare disease in perspective, knowing that i'm blessed to have all my parts, am upright and breathing fairlly well, can drive, move around with my walker and am blessed with wonderful friends who are always there for me...doesn't make me hurt any less...just keeps me in check...I wish I could wave magic wands and make all the hurt and pain go away but I can't...but I can pray and send good thoughts along...glad you'e here and glad a friend turned me toward this site...off to bed
