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Help!
I cannot be the only one out there with this disease. I realize it's extremely rare, but there HAS to be somebody out there with this combo that can help. I want to discuss symptoms both physical and emotional. Please make contact if you have this or can help. I have one more test (adrenal vein catheterization) before I'm to have surgery, and I am scared and really want to get more info. The bloody endo's aren't helping very much and as far as a support group goes, I've heard of none. I would like to start one if I can find more like me out there.
Thanks!