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Discussions
back & chest pain
- By Binu · Posted July 1, 2009
- In Getting a diagnosis · 0 replies
- About 3 months back, I had a severe pain which started in the back (middle) and spread to the chest. The pain was excruciating after I slept for about 6 hours and it was almost difficult to breathe as ...
Diagnosis, Management & Treatment of Progressive Neurological Disease
- By Kim · Posted June 30, 2009
- In Finding a doctor · 0 replies
- National Tay-Sachs & Allied Diseases Association, Inc (NTSAD) and Brigham & Women’s Hospital are pleased to offer a CME Conference, Diagnosis, Management & Treatment of Progressive Neurological Disease ...
MGUS
- By Blkbeauty12 · Posted June 29, 2009
- In How my disease has changed my life · 0 replies
- I'm more concious of what I eat and drink; I'm also more aware of what my son eat and drink! I feel like I'm always "waiting" for a final curtain call or something. I mean, I sit on pins and needles all ...
Severe Class 2 Malocullsion
- By akapoison · Posted June 29, 2009
- In How my disease has changed my life · 0 replies
- Hello, my name is Evelyn Wildes. I was born with a Severe Class 2 Malocclusion. I suffer chronic pain, muscle spasms, migraines, clicking in both jaw joints, severe TMJ, and limited opening of the mouth ...
CCA life expectancy
- By Ekaterina · Posted June 29, 2009
- In Getting a diagnosis · 0 replies
- Hello! My name is Kate, i am 28 years old. I have a problems of information because i am from Russia were genetics is an exclusive specialization. I want to know about genetic differences between Marfan ...
Tarlov Surgery Outcomes.
- By ColleenInCanada · Posted June 26, 2009
- In Getting a diagnosis · 3 replies
- I have just been diagnosed with a 1.5cm Tarlov cyst in my S1-2 region. It has been causing sciatic type pain for the past 3 yrs. I am waiting for an appointment with a neurosurgeon - which will likely ...
It's Cost Me My Job, Insurance, Part Of My Sanity, And Still Undiagnosed
- By lf325 · Posted June 25, 2009
- In Getting a diagnosis · 25 replies
- I have had a chronic condition for over a year and am still undiagnosed. My symptoms include fatigue, nausea, occasional vomiting, headaches, changes in bowel, reoccurring flu, and a constant thirst ...
Help!
- By augie5 · Posted June 24, 2009
- In Getting a diagnosis · 4 replies
- Four years ago I started having horrible earaches. Several months later I had some dental work done, came back from the dentist and my heart started palpitating, throwing PVC's every second or third beat ...
LOUIS
- By carolerichard · Posted June 24, 2009
- In Finding emotional support · 0 replies
- PLEASE ANYONE WITH ADLT ONST ALEXANDERS DISEASE PLEASE CONTACT ME ...
PFAPA
- By danitorgersen · Posted June 24, 2009
- In Getting a diagnosis · 4 replies
- does anyone know any information about the PFAPA (periodic fever, aphthous stomatitis, pharyngitis, cervical adenitis)?? Or is anyone dealing with this syndrom with one of there kids?? PLEASE HELP ...
Cystic Hygroma research in Norfolk VA
- By thevogels · Posted June 23, 2009
- In My disease has no treatment · 0 replies
- My son is almost 5. When I was 30 weeks pregnant with him, I had hypertension, so I getting ultrasounds very week. One week, they found a spot on the picture. No one knew what it was. We did research ...
RTA
- By PJ75 · Posted June 22, 2009
- In Finding emotional support · 1 reply
- Hi I was wondering if anyone on this site has or knows anyone with Renal Tubular Acidocis I would like to find others who I can relate to that have the same disease. Thanks for your time :) PJ ...
Marine Bacteria Infection
- By kraemer40 · Posted June 22, 2009
- In How my disease has changed my life · 5 replies
- Does anyone know about marine bacteria infections.. My husband 48 yrs old a fisherman by trade has started with this in Nov. 2008. We are at the point of surgery 3 times its on his hand and middle finger..A ...
spherocytosis
- By sfguido · Posted June 21, 2009
- In Tips for caregivers · 3 replies
- Hi, my wife and I gave birth to our son on 3/11/09 he was born with hi jaundice and had to get a blood transfusion, about 2 weeks ago we had a cbc done on him and he had a hemoglobin level of 6.3. we ...
Hope in Weeble Wobbles
- By 2plus1not3 · Posted June 17, 2009
- In Getting a diagnosis · 0 replies
- I just recently went to see my ortho surgeon as I have been sidelined lately with 4 herniated discs. Though it is an unofficial diagnosis he says I have weeble wobble syndrome. No matter what injury or ...
mastocytosis
- By Doobie628 · Posted June 16, 2009
- In Getting a diagnosis · 4 replies
- I have been going to doctors for over a year now.. the latest mentioned a diagnosis of Mastocytosis.. I am wondering if anyone knows if edema of the extremities is part of that disease....any help is ...
RRP
- By Papilloma · Posted June 16, 2009
- In My disease has no treatment · 9 replies
- My sons has Recurrent Respitory Papilloma (virus on the vocal cords). He has been treated with Cidofovir every 6 weeks for the last three years with good results. Now the doses they must give him have ...
Parvo B19
- By tday · Posted June 15, 2009
- In Finding a doctor · 0 replies
- I live in NC and have being having flu-like symptoms, fever, joint pain and swelling off and on for a year. I was diagnosed with Parvo in April and underwent 5 IVIG treatments. I initially noted several ...
Erythemia multiforme
- By faye40 · Posted June 13, 2009
- In Finding emotional support · 0 replies
- I want to find someone who has this disease. i have had it since i was 13. i would really like to talk with someone about how it has affected their life. I am still trying to cope with having this disease ...
Stiffman sindrom
- By mela_2u · Posted June 11, 2009
- In Sibling issues · 14 replies
- hy, im from Romania and my sister (35 years) has been diagnosed with stiffman sindrom a few day ago, after 7 years of mistake diagnose, and i have a million on questions...is this disease progressing ...
