Discussions
- By Tracietheonlyone · Yesterday at 9:57 am
- In Finding emotional support · 2 replies
- My daughter has KT, she is 12 She recently started having a rash which the doctor decribed as Pityriasis Rosea? Has anyone else had this... Thanks Tracie ...
- By bertolas · October 8, 2008
- In Getting a diagnosis · 0 replies
- ANY HELP ON THIS CHILD WOULD BE GREATLY APPRECIATED THEY ARE GOOD FRIENDS AND AND THEY ARE BESIDE THEMSELVES TRYING TO FIND OUT WHAT THIS KID HAS. Hi Deb, I got as much info i could on Britney She's 11 ...
- By Donna1959 · October 7, 2008
- In Finding a doctor · 0 replies
- My 24 year old daughter, who lives in Atlanta, is looking for a Dr. who has knowledge concerning this condition. Her symptoms, which range from rashes to very painful swelling of different areas at different ...
- By Vivien · October 5, 2008
- In Getting a diagnosis · 2 replies
- Hi, This is my first posting. I live in Ireland and am 46 years of age and have just been diagnosed with Spina Bifida Occulta, Tarlov cyst on s1, duplex collection system in my left kidney which is also ...
- By Tatina · October 3, 2008
- In Getting a diagnosis · 0 replies
- my 80 yr old mother was misdiagnosed for 2 months with a stroke.Her weak right leg, arm and slurred speak got worse... another neuro said she didn't have stroke. Admitted to Duke and had all kinds of ...
- By FaithLoveHope121 · October 2, 2008
- In How my disease has changed my life · 4 replies
- I have been dealing with this eye disease for about 13 years now. These last 2-3 years have proved to be the worst of them all. Not so much the disease itself but the treatments of Immuno Suppresssants ...
- By SickOfBeingSick · September 28, 2008
- In Financial issues · 2 replies
- I have a wonderful motorized wheelchair that a lovely lady gifted me when her husband died. However, it just sits in my shed. I can't use it because I don't have a lift to put it on the back of my car ...
- By Cali_mommy · September 24, 2008
- In Getting a diagnosis · 0 replies
- I am looking to connect with anyone who has a child with this rare genetic syndrome. My son is waiting to be tested - just waiting approval for a grant from the only lab that tests for this syndrome ...
- By karen66 · September 23, 2008
- In Getting a diagnosis · 2 replies
- My father was diagnosed with Wegenes Granulomatosis in 1981 and passed away in 1983. My daughter started showing a variety of systems and after two years was finally diagnosed with Orofacial granulomatosis ...
- By wellimnot · September 22, 2008
- In Getting a diagnosis · 0 replies
- I would appreciate any info re: parvovirus. I was told that my lab test was positive but reflects an old exposure. I really can't find any infothat makes sense ...
- By tjsmile · September 22, 2008
- In Getting a diagnosis · 0 replies
- Hello This topic is very important to me, because my son has this deletion! As far as I know he is rare in being the only one with 14.1q to 15q missing so there is not to much doctors do for him. There ...
- By littledragonfly · September 22, 2008
- In Finding a doctor · 0 replies
- i need find a doctor that know about that ill in any state of USA, here, Peru, nobody knows what do with me.Also i have Hashimoto syndrome ...
- By pita · September 20, 2008
- In Financial issues · 0 replies
- Helping One, Who Helps Others! featuring Gospel, Blue Grass, and Country Singers and bands PLUS, an Auction, Food, Horseshoe Tournament and Carnival Games Friends of Cherokee County Firefighter / Fire ...
- By keeley03 · September 18, 2008
- In Finding emotional support · 4 replies
- Hi, i just recently joined to this group but cannot find any recent entries or discussions about ectrodactyly. i would like to know if there is anyone that has this disease or has a family member with ...
- By jmcpowlen · September 17, 2008
- In Finding a doctor · 1 reply
- My 2 year old nephew is in kidney failure. He has not responded to any drugs and he continues to get worse. Because he is not responding to the usual drugs, his doctor thinks he may have "congenital nephropathy ...
- By Joby · September 17, 2008
- In Getting a diagnosis · 7 replies
- Hi I am a 28 year old woman who has had TRAPS for 8 years. Is there any women who have any information on pregnancy/conception issues and suffers from FMF/TRAPS/periodic fevers ...
- By shellymoon · September 14, 2008
- In My disease has no treatment · 1 reply
- Head, Neck, Spine, Hearing, Limbs, Ectra it is very rare as I am one of Forty in the Nation and at the time that I was rediognosed twenty- six yrs., ago I was one of five and the only female I was rediogned ...
- By pita · September 9, 2008
- In Getting a diagnosis · 9 replies
- I have been back to my nuero whom has read the reports from where I was attmitted to Emory Medical Center and apparently I'm making all my symtoms up. I dont know why on earth anyone would want to be ...
- By Jannie · September 7, 2008
- In How my disease has changed my life · 2 replies
- To all September is Pain Awareness Month. We need numbers to let others know that we are here and need their support. Jannie State of Michigan Leader POPAN Detroit RSD/CRPS Spoke Person ...
- By donnaarr · September 4, 2008
- In Financial issues · 1 reply
- I am a 45 year old woman, mother of two daughters and was married to my husband for ten years. I was thrown out of my family home on July 18, 2006, at 9:00PM by two Catawba County, NC, Sheriffs. I was ...
