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Interesting little adventure this morning. I'll leave out the long part. But, I wound up getting the # of someone at the bigger newspaper in Western NC. I called the lady there, and they may, at some point, be interested in doing a story or series on Orphan Diseases, one of which is Erdheim-Chester. It's possible, and I certainly hope likely, that this would increase knowledge of these illnesses, then jack up funding and attention. She seemed very interested and asked lots of questions. I'm a writer, not an orator. But, hopefully I did okay and tweaked her interest. I've begun a cause at Facebook:
http://apps.facebook.com/causes/97118?fp=fb003&recruiter_id=16154293 , and am looking into that writing I talked about.
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