Please forgive me as the topic is misleading. The intent of my discussion is to glean what appears to be many different treatment avenues for Stiff Person Syndrome. Personally, I have been on almost every muscle relaxer known to the medical community, as well as Botox injections, accupuncture, anti-eplipsey medications and I am just wondering what everyone else is doing, and what seems to work best. Thus far, at least for me Valium is the hands down winner. While it helps my muscles to relax (most of the time), I then have to deal with the joint and muscle pain. With the onset of Lordis, this is becoming a much bigger issue as I cannot seem to straighten my neck up without a great amount of pain. The same can be said for my left hip and side, my hands, and my knees. Any thoughts on any or all of the above would be kindly welcomed.
ci_tech
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Treatments for Stiff Person Syndrome
- By ci_tech
- Posted May 26, 2009 at 9:17 pm · 2 replies
- In Finding a doctor
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- By Domenick
- Posted May 27, 2009 at 6:19 pm
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hello,
i have sps and valium is the winner. you have to work with you doctor to get you meds set at the right levels. At some point you will plateau but getting the the right doctor and the right med levels you will some improvement. Google sps over and over to you find what you are looking for.
- By Betty-Oops
- Posted June 12, 2009 at 4:26 pm
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There are many medication combination to address the many symptoms of SPS, depending on syndrome variant and severity of your symptoms. The following paper lists the medication classifications for SPS treatment. It would be a good printout to discuss options with your doctor.
What works for me is baclofen, (spasticity), diazepam,(muscle relaxant, anxiety), and gabitril, (epileptic). I do not have epilepsy though. I test for the GAD antibody so IVIg infusions help me as it is an immunomodulating therapy.
http://www.springerlink.com/content/8t708w2146306001/fulltext.pdf
Good Luck!
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