Syndromic Diarrhea

My daughter Abigail passed away in May. She was 2 years old and I found her diagnosis just a week before she passed. She had Syndromic Diarrhea, also known as Tricho-Hepato-Enteric Syndrome or Phenotypic Diarrhea. The information I found was all from Paris, France. I was just wondering if there were people here in the U.S. with this disease. I would like to raise awareness about it to hopefully found out more about this extremely rare and fatal disease.


You can see Abby's complete story at www.carepages.com her carepage name is AbbyGrace2007

Thanks so much!

In Christ- Sara