i was diagnosed with HSP 2 years ago and have been battling with it since then. i went to seek medical advises from different doctors after another but nobody could ever give me a reason why it is happening. it all started with a skin rash followed by severe stomach pain...i went to a Singapore Skin center and had a second opinion with the doctor. They took a sample of my rash through skin biopsy, urine tests and blood tests... The results were okay except for that HSP confirmation. The doctor gave me Prednisone for 2 weeks and Colchicine to maintain. The medicines helped to fade the rashes on my legs away...But it never stopped. Working as a manager for two companies isnt that stress free, and so i thought stress could be one of the reasons why skin rashes appear.
I did try see different doctors on my own thinking that there could be a different technique how to handle this rare disease. But they all gave me the same results. I was living alone for the past years and i really had no one to share my dilemma with. i work the whole day and go home alone and no friends to keep in touch with well i mean physically where i can confide to everyday. i do see my mom and my sisters through video cam and phone, but i couldnt even share with them my problem,because i dont wanna worry them. and so yeah,i decided to go back home to my country and seek another doctor's advice. i went for endoscopy as per advice.
when i was taking colchicine and prednisone,i had all the side effects celebrating in my body. sometimes id wake up at night and lose my breathe. i wanted to call for help but before i do i realize that yeah i am alone. before i realize to cry,tears are already falling down on my cheek. that was a couple of weeks on the onset of the rashes and when i started seeing the doctors. but after a couple of months, i had accepted my fate. i couldnt be any sadder. but i was getting financially sadder and worse emtionally drained.
moving on.
the hsp rashes or whatever it is kept going on and on appearing after another. i couldnt sleep at night without my bible beside me and every morning i make it sure that it is there. i see myself at the mirror and alot of things has changed; my face is bloated and hairs are falling off..but u know that when u have this sickness and the people that could help u (doctors) are the ones telling u that there is no certain cure for it?...it could just make me smile.i couldnt be any sadder with life..i just keep looking on the brighter side of it. after all life is life. we cant change some things. we just have to live with it. =)
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