Ramsay-Hunt Syndrome

I hope to connect with others who suffer from this strange disabling syndrome. I have lived with this about 4 years and have found very little help. Is there anyone else out there that is suffering from this? It started with the right side of the brain ( cranial nerves 7,8,9, being affected. Now my Dr.'s say I am the really rare one because the left side is also affected. I have had some events that strike with any sudden change of emotion, bad or good, or stress or fatique. That makes this disorder even harder to cope with. I might overcome the pain in about 2 weeks but the shingle virus fatiques the body so bad. There seems to be no cure because it is a virus. I have been told so many things that do not seem to fit the severity of my chronic diagnosis. My Dr. is now recommending a nerve block. He says that it can last 3 to 6 months. I have not studied on this subject yet. Not to sure about it. In fact it sound dangerous. Any body out there had any luck with treatment. Bumpy