0 Recommendations
My son has coped with this for 10 years. We only now have had a named put before it...it is hereditary. Others in the family have suffered...the pain is constant...and sometimes they can barely go on.
But they do and they figure out personal ways to cope..they struggle and take it one day at a time. Hopeful that with genetic testing and experimenting an answer is found....always have hope.
Add to the discussion