*sigh* Just to start off I am 16 but take me seriously. My problems started when I slammed my hand into my dresser and sprigged it along with getting deep cuts. I thought nothing of it and put a band aid on but the band aid kept sliding off and it looked like their was white stuff on it. Thought nothing of it but after I got my splint my head started to hurt, thought nothing of it. I see a pattern. The next day I'm short of breath I have a huge headache, nausea, dizziness, quick bursts of fevers and chills and the whole shebang it had only been one day. The next day I get confused, lethargic, I feel like trash, my spine feels like their a needles all over the place and my head is killing me, exploding almost. The third day was the same except now I am twitching uncontrollably sometimes along with the other symptoms.
My mom and I go to the doctors to get checked out, I'm still twitching thinking I'm going to have a seizure or something and my head hurts. The doctor gives me a neurological exam, the last part the nose to finger thing made me so dizzy it was sickening. Then I start twitching even more but the blood work that I did before all of this started came back clean as a whistle, I am disturbingly healthy. They think it's a virus but I know deep down this is no virus.
So me and my mom leave the office and my head is throbbing, while we are on the road I feel like my brain is trying to escape. My head hurt so much. Then I started to talk and think slower it was weird, I wanted to talk faster but it was a struggle, something wouldn't let me speak fast. I was scared for my life if this is going to damage me like that then I try and increase my activity like exercise and I start thrashing and being disorientated I didn't understand why and even now I'm twitching for no reason, I can't control it. Then as I lay in bed my spine tingles right at the base and I twitch harder and my head hurts along with my stomach feeling like it has needles in it.
Now here I am trying to get answers when everyone says their is nothing wrong with me even though last night the symptoms got even worse and I got stiff neck and spine. Now level with me on this. Their is something wrong with me and I know it will take them a long time to find out what it is or just misdiagnose me left and right. Could any of you possibly help me out on what all of this might be? I have a bunch of symptoms that come and go, if it's not one thing it's another. Also they seem to get more intense each day and each day something else is wrong with me to add to the list. By the way all of these symptoms came out of nowhere, it started off as a bad headache. My mom is saying their has to be something wrong with me emotionally for this to happen, honestly if that were the case I would get hives and I haven't gotten any. Plus school is boring is that emotionally going to kill me?
Now since my mom doesn't believe me and the doctors think I'm fine I need to do this myself. I know my story sounds kind of like a lifetime movie but bear with me. I need help and I'll get it anyway I can...I know something is eating me inside and my body just doesn't want to dispel it so...help anyone?
NEWS~ I haven't found anything yet, but I have discovered today that every time I have a headache or a spine ache I want to sleep. Is their a connection? I don't know but this is starting to sound like meningitis with the sleepiness and everything...Then again it doesn't fit...I don't know what to do now, this is such a strange symptom.
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No one believes me
- By Chaoticly_Yours
- Posted April 1, 2008 at 1:02 pm · 18 replies
- In Getting a diagnosis
- Shared with the public
- Edited April 2, 2008 at 1:25 pm
Explore topics in this discussion:
Anxiety Exercise Dizziness Pain Chronic pain Meningitis Lyrica Depression Fever
18 replies
- Oldest first
- Newest first
- By Kathie1
- Posted April 2, 2008 at 8:49 am
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Hey, I am so sorry to hear about your illness. Whether any one believes you or not, if you feel in your heart that there is something wrong, then you need to pursue it. My son was undiagnosed and had been to multiple Dr.s for months who said that he needed to see a psychiatrist. When we took him to see a psychiatrist, they looked at us like we had 7 eyes for even being there. They thought it was neurological. The neurologist thought it was psychological...that he was doing it to get attention. It really sounds to me like you picked up some bacteria/viral bug that is having a profound affect on your neurological system. Just because everything comes back normal, that does not mean that you are any less ill. There is something wrong with you, as you know your body better than everyone/anyone else. So my advice to you is that you keep looking for someone to find out what is wrong with you. Someone somewhere will know what is wrong with you. My heart goes out to you. It would be better if you could have your mom as your advocate, but if you have to go it alone, then by all means do it. What I finally did was search on the internet. You look up diagnosis that seem to fit and when you do not understand a word you look that up and then you progress onward until you find the right diagnosis that fits. Once you do that you should be able to find a Dr. that specializes in that illness and get help. You are in my thoughts and prayers. Please know that I DO understand how difficult when others do not believe you. Hang in there and keep looking for those answers. Blessings to you. Kathie
- By thejae
- Posted April 2, 2008 at 9:23 am
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I'm agreeing with Kathie. Your head hurting along with fever and chills that 2nd and 3rd day is to me a big indicator that there was something going on, probably bacterial/viral...and probably from that cut.
My question would be: Did anyone look at the deep cuts and examine for infection of some kind and culture it? Did anyone look at the cut to determine if there are still any particles left from the dresser inside your hand that might be depositing some kind of germ into your body?
I'm so sorry you're going this alone, but, good for you that you are pursuing it yourself, despite 'results'. I'll be praying for you. Please let us know how you're doing. Godspeed..
Julie
- By Chaoticly_Yours
- Posted April 2, 2008 at 10:14 am
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Thanks everyone, you really don't know how much this means to me...
To answer your question thejae the first person to see the white stuff on my cut was the nurse and she just glanced at it put some jelly stuff on it and called it a day. The doctors saw it next and they just glanced at it too so maybe their is something that floated under the cruddy band aid. That gives me an idea, I'm going to search about white stuff on cuts, thanks a lot this could be a great start.
- By Kathie1
- Posted April 3, 2008 at 8:52 am
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You really need to get an infectous disease Dr. to culture the wound and to run more tests. Please keep us posted as to what you come up with. Praying for you still.
- By Chaoticly_Yours
- Posted April 3, 2008 at 10:43 am
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I tried and no one wants to do it, the wound is already healing up too and I am getting worse like passing out spells and such. My mom still thinks it's my body saying its under stress...*emotional problem* I think I'm going to let her take me to a therapist and then watch them say what are you doing here. I'm so lost I really don't know what to do and I know something is eating my insides and it's so frustrating! I'm just thinking of letting it happen and if I get destroyed from that then I'll just let it go. I'm loosing the will to fight this.
- By thejae
- Posted April 3, 2008 at 11:02 am
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I agree with Kathie1. Infectious Disease is the way to go. As young as you are, you are probably not familiar with the inroads of dealing in the medical community. There are a group of specialists who are actually called 'Infectious Disease' physicians. You can probably find them at any teaching hospital. They can culture your blood to see if there is anything present, and can draw out a sample via hypo to culture what is in the cut. I think I would call a teaching hospital in your area, and find out how to access the Infectious Disease Team.
The 'white stuff' seems consistent with your bodies antibodies fighting off infection. Usually 'white' means 'antibodies at work'...which would also be consistent with your headaches, nausea, and dizziness, as the infection progressed.
Here I am trying to be a 'side chair diagnostician', but those things seem consistent with someone whose body is battling infection.
Godspeed on your journey. I'll be praying for you. Let us know how things progress.
Julie
- By thejae
- Posted April 3, 2008 at 11:05 am
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PS. Keep the faith. God cares, and so do I.
- By Chaoticly_Yours
- Posted April 3, 2008 at 11:09 am
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I'll try to look that up then thank you and thank you for caring so much about me *sigh* I'm just getting so tired now of it I just want it to go away.
- By Chaoticly_Yours
- Posted April 3, 2008 at 8:11 pm
- Report post
My mom doesn't want to try and look for an infectious disease and I think she doesn't have to. I think I have a brain abscess, it all makes perfect sense and because I'm getting and EEG they may find it. No they will. Give me luck and good wishes because I am at the end of my rope.
- By Kathie1
- Posted April 4, 2008 at 5:57 am
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Please do not quit on yourself like that. You sound far too sweet and intelligent to quit. You are so worth any effort it would take to get you well again. I would just beg and plead with your mom until she would listen to you. Or...you may want to show her these notes....maybe then she will listen as we have nothing to gain and nothing to lose by giving you advice. (we do not have to pay the medical bills either though. Please, please let me know what happens. Love to you, Kathie
- By psjaquith
- Posted April 6, 2008 at 2:20 am
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with headaches you may need to see a neurologist..he will also assess the pain in your spine. If there is something wrong there, he would refer you to a neurosurgeon.
You may have some sort of infection; however, I would start with a neurologist.
- By Chaoticly_Yours
- Posted April 6, 2008 at 4:24 pm
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Thanks for the support once again and I did take a neurological test, they found nothing wrong and probably thought I was faking it, no they thought I faked it. I don't know what to do...
- By SickOfBeingSick
- Posted April 10, 2008 at 1:43 am
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Don't give up. You may have to be very patient and persistent with your Mom and the doctors. You know your body better than anyone else. Tests are only good if the doctor knows to do the right test to look for the right illness. Even then, lab tests lie A LOT the time. Good luck.
Cathy
- By Chaoticly_Yours
- Posted April 10, 2008 at 7:43 am
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I think I have found some leeway, I have come to the conclusion that it is chronic pain since all, even my EEG tests came back normal (that is I believe my mom without seeing it myself) Now she is actually being rude enough to say that it can never go away and I can't treat it. I went online and looked it up and I can I just have to find someone who will give me the right strong medication (tylanol can't do anything) So now I know from start to finish I was by myself and my mom still doesn't believe their is anything wrong with me although I was the one to look everything up. It is official I have no family, that is upsetting. Thank you for all of your help I can now close this chapter on my life and make some doctors appointments myself if I have to. I want to be able to do normal things again so off alone I go. Thanks again I will come back if I need help.
- By MarieTwinTubes
- Posted May 8, 2008 at 8:34 pm
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I have just read your correspondencefor the first time. Please give us an update. Please do not give up on yourself. I hope you have gotten medical help. Sometimes life can seem really cruel, but keep your faith and keep going. Marie
- By dsweeney
- Posted June 7, 2008 at 4:05 am
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Hi Chaoticly Yours, do me and you a favor. Call the neurologist's office back and ask them, no tell them that you want a set of MRI's done of your neck and brain (due to you having headaches and migraines)and tell them you want them specifically to look for Chiari One Malformation. This isn't something they would nomally look for nor do normal doctor's know much about it. I have this myself and everything that you have mentioned I have and it took every doctor in the town I live in 7 years to diagnose me and trust me I had dr's tell me I was crazy and at one point I started to believe them and then I got my whits about me back and said to myself "I'm not crazy, and I know there is something REALLY wrong with me." And I didn't stop till they figured out what it was and actually I was on the computer every day looking myself then one night I saw an episode of Mystery Diagnosis and I knew what I had. So don't ever give up. I know you said you are 16 but when all of this started with me I was 27 but the sooner you find out what you have the sooner you will start feeling better. And you can never be too pushy with the doctors, if you feel they are not listening or aren't going to help you move on to another doctor that will, because there is a doctor out there that will find out what's wrong.
Dawn from Florida
- By dragonfly44
- Posted November 22, 2008 at 8:03 am
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Chaolticly
Dont lost your faith in your selft....believe in you.....and with all world is was neccesary but that other must given to you a really and comleply answers for alls symtoms that you do are.....at your age is difficult believe in you...but are my age, with 44 years old..also sendt my at siquiatrics..but he told me ,.....go to neurologist....i can not do nothing for you,......i will go for siquiactrical test because i am tired to hearting you are healty..or diagnosis that not puzzle with my symtomps....i do not who are the stupid.....the speciallist or me.....when they must know something about deaseases.....and fibro...not concide in nothing whit me...intested that , i am taking lyrica given for firbro and obsviusly dont make it nothing for me.....try to be patience..........god sure make anything for that any believe in you......
Luck
- By tditto
- Posted December 18, 2008 at 12:17 pm
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Hi Chaotic. My mom went through something similar in the process of getting diagnosed. Note*not same condition or symptoms*. The doc she trusted for 35 years basically said it was in her head. Of course it was in her head - it was a neurological disorder. He dismissed all of her symptoms because the tests were all clean. Her MRI's are fine. EEG = fine. Blood workup = fine. I was so angered and frustrated at this incompetent doctor that assumed just because HE didn't know the answer or because it didn't show on a test that it was nothing. How arrogant!!! Get a second opinion. Get a third opinion. Keep a diary of your symptoms as best you can. The first thing someone finally did with my mom was send her to a psychiatrist. Still thinking it was all a result of her fear that it was something they figured the anxiety created the problem. (And this is after we fired the first quack - he wouldn't even send her to a shrink - just told her to go home.) The good news of going to the psychiatrist was that she did get something to help with her anxiety and it only highlighted that it wasn't the root of the problem. It was a symptom, as was depression. It was a very small part of a much bigger problem. It took 3 doctors, a psychiatrist and 3 neurologists to get an answer. I'm telling you this so you don't give up. It isn't alwasy easy to get an answer. DO NOT GIVE UP. In this day and age your health care is only as good as you force it to be. You have to be assertive and self-educated. Have you been on medical web sites to check your symptoms? WedMd is always my first stop. It may not have the answer but it could have a link to something that will help more. Try to find a neurologist online that answers questions for free. Try to find a doctor that will refer you to someone who knows something. It took my friend Mish what seemed like forever to get a diagnosis when she had lymes disease. Tons of crazy symptoms. It took another friend years to get a correct diagnosis of her lupis. Be patient. There is a lot of trial and error. But if you find a doctor that will work with you, stick with him/her. You deserve to be taken seriously. Don't get offended if someone suggests a psychiatrist. There is a lot of anxiety and depression that goes on with hard to diagnose illnesses. There is no shame in taking something to help you as you search. Often anxiety and depression are present it's even harder to diagnose illness because they carry symptoms of there own. I know this is a lot. Hang in there. I'll be checking in on you - ok?
t
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