Neonatal Graves disease

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Hello all,
I am trying to find anyone that has had a child with Neonatal graves disease that may need some support. Unlike most people that have children with this disease I am well versed in it. I have Graves, and have passed Neonatal Graves along to 3 of my 6 children. My 11 year old son also has Graves. The last 2 children(twins) were dignoised with Neonatal Graves at 18 weeks in utro, which is actually unheard off.
I have learned alot about this disease, and feel that I need to find others that may be dealing with this for there children.
Mind you I not only have been dealing with this disease for my children but for myself, and it can be a very complicated and life threating disease in infants as well as adults.
I hope to reach out to anyone who maybe facing this and help them threw it.
Valarie

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