I go to doctors they want to study me.I Talk to people they shun meI have NF1.I have tumors that grow on my nerve endings.My body is covered My spine has been attacked by them so I have bad pain all the time.I feel alone
I am so sorry you are going through that...and that you have such little support around you so that you feel so alone!
I didn't know what NF1 was, so I looked it up. I don't know where you are, but I found this site, which has some links to find local support, and a doctor that is knowledgeable about your disorder. It's: http://www.ctf.org/
I hope this helps you, Kivalina. I am praying for you, for God to surround you with those who know about this condition and know how to help you and to be with you.
Hugs, from across the miles,
Julie
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