Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

msa

0 Recommendations

I wasdiagnosed 5 yrs ago with probable MSA. I have seen multiple Dr's at mayo clinic in MN. MSA can't be diagnosed definately except by autopsy of the brain. Problems started in my feet working it's way upward. Now affecting my eyes. has anyone had problems with their eyes with msa?

Explore topics in this discussion:

Memory Dysautonomia Tremor

4 replies

I also have been diagnosed with msa. Started 5 or 6 yearsago with crazy walking. My vision has gotten worse in the last 6 months. Use a wheelchair sometimes, have very low B/P.

My husband is suspected of having MSA now. He was initially diagnosed with Parkinon's (probably Plus). He had a sudden case of double vision. His double vision has gotten better, but his prescription drastically changed. He has some slight tremor on both sides. He is doing to NIH in a week for some extensive dysautonomia testing. We know that there is no specific test to completely confirm MSA, but we are hoping to get a closer to a more firm diagnose, so we can try to figure out what to do next.

I have msa-c they diagnosed me from my systoms and a mri that showed spots on my brain that have shunk and dyed.The systoms are low bp, lost of short term memor and now its in my long term,tremors,weakness,pain in all muscles,trouble with blance.This is a few.Please forgive my spelling that another thing i am having trouble with.If anybody wants to talk about msa my e-mail is yamahavmax54@copper.net.May be some of you could give me some advice cause I am about to go craze with this!Good luck,and god bless you all.

MSA HAS NOT MESS WITH MY EYES YET THANK GOD.I AM ON MY 3RD YEAR OF MSA.
I HAVE LOSTED MY SHORT TERM MEMORY IS GONE NOW IT'S IN MY LONG TERM,ALSO MY BOWELS ARE SHUTTING DOWN I HAVE TO TAKE A SHOT EVERY OTHER DAY SO THEY WILL WORK,ALSO HAVE THE SHAKES,LACK OF BLANCE,CANN'T SLEEP,SLEEP APNEA.
THEY FOUND MY MSA BY MRI. IT SHOWED SPOTS SHRINKING IN THE CEREBULLUM OF THE BRAIN.PLEASE LOOK OVER MY SPELLING AND GRAM.

Add to the discussion

Don't have an Inspire account? Join now!

Forgot password?

Group leaders

You