If anyone has information on how to have more energy, please let me know. I take Levocarnitine 330mg-3tabs/day, CoQ 10 1000mg/day and many Vits. and minerals per day. I passed out at work and could not move. For many months the doctors thought I had Myasthenia Gravis and was treated with IVIG - 25 doses. I even had plasms phorphesis twice. Over a period of three months. Finally, when they realized I was still so weak, they said it was something else. They dismissed me. I finally found a wonderful Dr. in Phila. Went into the hospital for a week and came out with the diagnosis of MD. I had five trips to ICU because I had no energy to move. My eyelids get very tired, but no visual disturbances.
I am looking to have more energy. I just lay on the sofa all day. Any information would be greatfully appreciated.
Thank you so much.
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Mitochondrial Myopathy Disease
- By mariebluebond
- Posted June 3, 2009 at 1:30 pm · 0 replies
- In How my disease has changed my life
- Shared with the public
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