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I am looking for any other peaople with or who have a person with Klinefelters Syndrome, whether it be a partner, sibling, or child, Here in Australia oir any other part of the world, I am looking to make a worldwide group to chat with.
Stewart
my son has a variant of klinefelters he has xxxy syndrome.. i have found some people with klinefelters on the net and a few with xxxy..i wish you well
Hi Amy, How old is your sone and does he get any help , how is he coping with klinefelters and how do you cope, lets chat.
Stewart
sorry stewart it took me so long to respond..my son is 4 years old and he seems to be doing okay as of right now.. from the xxxy his immune system seems to be taking a beating since most immunites are from the x-link.. did you ever find others to chat with as well.. i pop on sometimes to xxxytalk and have found others who relate but he is only 4 and his expressive speech is very delayed..but he is one smart boy he just can't talk very well.. He has trouble with his joints and his feet..
forgot to mention he was in early childhood intevention until 3 and now he attends public school in the early education program
Hello there, I have just signed up on here. I have been desperately looking for a forum online to which i can chat to others with Klinefelters. I am 31 years old and found out 13 months ago that i had the syndrome. It explains so many things about me that I, my friends and my family have always seen different or 'special' in me. Would love to talk to others with this condition.
well guys I have klinefelters syndrome 47yo male married 1 child .I also help run a klinefelters support group, melbourne, australia so if you to chat I am a good listen and maybe able to help you out with questions that you might want to asked thanks kies
I am 62 and have Klinefelters, I am married and have 3 adopted children. I found out the second year after I got married in 1971. I have lots of things that has happened to me because of of KFS, most of them , not good.
Hello, I'm 23 and was diagnosed with KS when I was 19 or 20, although I knew something wasn't right before I was actually diagnosed.
I was told I was a "late bloomer" when I was in Highschool and failed my physical because of it. It wasn't until later I found out I had it and I only took Testosterone for a few months. Has anyone else taken testosterone or are they on it now? I really think I should get back on it so I don't feel so left out of the loop of life.
I have a bunch of other medical problems too, I think because of the KS, but perhaps not. I have also have Lupus, Epilepsy, and ITP (a blood platelette disorder).
It's nice to know I'm not alone and that people can still get married and lead a decent life.
Thanks for listening,
Brandon
Is there someone taking testosterone? I got KS too but not actually treated by any ways I'm interested in testosterone dosage. (Injection or other ways)
Hello, my son is 13 and was diagnosed with KS three years ago. He was experiencing problems with comprehension and language at school so his school suggested we try a few tests to find out what we were dealing with. His blood test revealed everything we needed to know. After the initial shock for us all he - and we - are doing really well. He has not needed his testosterone supplements yet as he went into puberty all on his own and is steaming through it like a steam engine. His biggest challenges are still his language and comprehension skills at school and he started high school this year. He is such a smart boy that although he does come up against obstacles occasionally he is doing well with his subjects and has one on one help if he needs it. He has a very healthy social life and has close friends, although he also loves his time to himself. As his pediatrician says, they have not written the book on our son yet!
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