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I am 44 and was just recently diagnosed with this. Although I have always known I had the madelungs deformity I never knew about the rest of me until recently. Would like to know if anyone else has this type of dwarfism or anything close and what can be done about daily joint problems. Doctors just don't seem to be educated enough in my area.
The following resource may also be helpful:
Little People of America (LPA)
250 El Camino Real
Suite 201
Tustin CA 92780
Phone: 888-LPA-2001 (888-572-2001); 714-368-3689
Fax: 714-368-3367
Email: info@lpaonline.org
www.lpaonline.org
Thank you so much. I will give them a try.
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