Good Day,
My name is Mike Cox and I am a 40 year old male, diagnosed with Isaac’s almost 10 years ago. I have been experiencing symptoms for nearly 13 years, everything from stiffness to spasms. I have been on Dylantin, Baclophen, and now Tegratol. All of them have helped to some degree, but side effects were hard to deal with. Currently I am taking 800mg of Tegratol a day and doing Fair to Midland, as my mother would say. Unfortunately my youngest son was diagnosed with Myasthenia Gravis and was one of the 3% to develop Thymoma Cancer from it. Also he has another auto immune problem their calling Autoimmune Enteropathy. To make a long story short, work is difficult with my hands (dropping things left and right) and my strength seems to be dwindling rather quickly. Also the stress our family has been under has been insane. My wife is only working part time, because caring for our son is very time demanding. I am wondering if any one had tried to file for disability or had assistance in some form of job retraining program. I have been a tile contractor for 20 years, but unable to perform that type of work anymore. Is anyone out there having difficulty making ends meat because of Isaac’s? Look forward to hearing from you.
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Isaacs Syndrome
- By coxter
- Posted July 15, 2008 at 11:00 am · 6 replies
- In Financial issues
- Shared with the public
Explore topics in this discussion:
Cancer Isaac's syndrome Polymyositis Myasthenia gravis Stress
6 replies
- Oldest first
- Newest first
- By rickthurbon
- Posted July 17, 2008 at 12:13 am
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Hello Coxter
I'm not sure why you could not find the thread on the Inspire Sight that has the most Information on Isaac's Syndrome. At the moment there are about 178 Posts on that thread. Maybe someone can help you but if you can't find it, click on my details and you will find my email address and I will send you the link
Please feel free to join our discussion group
Regards
Rick
Sydney, Australia
- By coxter
- Posted July 17, 2008 at 9:11 am
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Thank you, not very computer savvy! Any help would be appreciated.
- By rickthurbon
- Posted July 17, 2008 at 8:47 pm
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Gday Coxter
Click on my profile and you should find my profile
you should find my email and I will give you the link
I am not too computer savy either
Ww hope we all an give you some help and direction If you read all the posts should get some good information
Rick
From Australia Down Under
- By dcarlo
- Posted March 16, 2009 at 12:35 pm
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If you live and have worked in the U.S.A. and paid into the Social security fund along with your employer(s), you can on your own or with an attorney, apply for social security disability or SSI. Go to your local Social Security office and start the paper work or better yet call and make an appointment ahead of time and ask what paperwork you will need to bring with you. Make copies for them before you go. If you are denied, appeal. Do not worry about attorney's fees. In an appeal, I am not sure about before the appeal,Social Security picks up the tab, 8unless that has changed. Contact your local U.S. Representative or Senator to update this information and for help. My Rep. was of great help. Best of luck to you. I have Polymyositis, not Isaacs.
- By scarletky200
- Posted October 7, 2009 at 12:10 pm
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Hey Mike,
I have a close friend recently diagnosed with Isaacs. He applied for disability and was immediately approved.
- By roybean88
- Posted October 8, 2009 at 1:35 pm
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Hello, Do you know what data your friend that has Isaac's need to get approved. I have thought of this recently as I have been having a problem with walking. I keep falling down. Any help would be great.
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