Isaacs Syndrome

Good Day,

My name is Mike Cox and I am a 40 year old male, diagnosed with Isaac’s almost 10 years ago. I have been experiencing symptoms for nearly 13 years, everything from stiffness to spasms. I have been on Dylantin, Baclophen, and now Tegratol. All of them have helped to some degree, but side effects were hard to deal with. Currently I am taking 800mg of Tegratol a day and doing Fair to Midland, as my mother would say. Unfortunately my youngest son was diagnosed with Myasthenia Gravis and was one of the 3% to develop Thymoma Cancer from it. Also he has another auto immune problem their calling Autoimmune Enteropathy. To make a long story short, work is difficult with my hands (dropping things left and right) and my strength seems to be dwindling rather quickly. Also the stress our family has been under has been insane. My wife is only working part time, because caring for our son is very time demanding. I am wondering if any one had tried to file for disability or had assistance in some form of job retraining program. I have been a tile contractor for 20 years, but unable to perform that type of work anymore. Is anyone out there having difficulty making ends meat because of Isaac’s? Look forward to hearing from you.