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Hi everyone,
I am a student in Massage therapy school and we had an assignment for class. It was to find a muscle disease and write about it and determine what manipulations to use on this person. First of all I do want to say that I do not have Isaac's Syndrome. I was wandering if anyone would be interested in sharing this disease with me and I am also wandering if anyone has ever gone to a massage therapist in order to help with the treatment.
Hi Theresa,
I have Isaac's and actually find that massage is one of the best tools in treating my condition. I would be happy to give you as much detail as you'd like. I currently see (and now work for) an osteopathic pain specialist. she began treating me with both proper medications and with deep tissue massage (we have on staff therapists for all our patients). Since my muscles are always extremely tight massage helps greatly. With this disorder I have found that everything makes my muscles tighten, cramp, spasm, and generally hurt. The massages do what I cannot, they force the muscles to relax. I get at least one half hour per week and up to two one hour massages per week. we focus on whichever muscles are worst at the time. I find that the massage reduces the pain in my muscles. I also have gained quite a bit more mobility. I don't know about other people's symptoms, but for me just about any stretch can cause a sudden spasm. Simple actions such as writing can cause my hands and forearms to tighten up painfully (this is true for all muscles, but that's a good example). I cannot speak highly enough of massage as part of my treatment. I am able to work almost full time again, after thinking I would go on disability, and massage is part of that change. I find that when I go a few weeks without it it my condition gets much worse. If you'd like to know more, I'm happy to share my experience. Best of luck on your research.
Zobi
Hello Zobi
I have posted on the Isaccs site recently saw your posts
there.
Need to have some physio/massage on my legs they are
killing me any chance of you emailing me directly so maybe my physio can contact yours.
My email rickthurbon@bigpond.com
I am finding it difficult to find Isaacs thread on this new
inspire site.
Rick Thurbon Sydney Australia
Hi Zobi,
I read your posting and was wondering if you are still receiving massages as part of your treatment? If so, have you had a large improvements from it or has it been pretty consistant with just temporary relief?
Thank you
Hi,
I get some relief in both categories. I get great temporary relief from massage. It makes a giant difference in my pain level. It is not a cure-all by any stretch. Massage does not make my symptoms reduce by a giant amount. However, I do notice that if I get regular massage I don't have as much of certain symptoms. For example I do not get the "charly horse" type of cramping. Also I find that I have a lot more flexibility and my body is not as stiff/tight/sore/etc. This is something that is a great help. So the answer really is yes and no on long term relief. If the massages are not regular I don't get steady relief. If they are regular the massage is a real life saver. Hope that info helps.
Thanks,
Zobi
I have been having massage regularly since I was diagnosed last year.
The massage has certainly help me a lot management
of the symptoms needs attack from all angless.
Rick
Sydney Australia
Thank you Zobi and thank you Rick for sharing. I have a friend who has Isaacs Syndrome and I am starting massage treatments on her and wanted to hear some feedback! I will post on the progress and if we find anything that might help in relation to massage.
Thanks Again
Rochelle
I don't know if anyone's heard of ldn (low dose naltrexone) but by all accounts it greatly helps those of us with auto immune problems. people with ms are extremely pleased with the results, i'm hoping to have aconsultation next week with a private gp, i'll keep you posted. in the meantime just type in GOOGLELDN it is amazing info. andy
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